• Principal Investigator
  • Female

Prof. dr. M.A. Grootenhuis MSc PhD

Position:
Main activities: Research
Specialisation:
foto M.A. Grootenhuis is one of the AMC Principal Investigators
Focus of research:
  • Psychosocial consequences
  • Children
  • Chronic or life-threatening diseases
  • Family members
  • Quality of life
  • Coping
  • Course of life
  • Predictors
  • Intervention development and effectiveness evaluation
  • Care innovation
AMC themes: Oncology, Public Health & Epidemiology
Departments: Paediatrics: Psychosocial care
de Ruiter MA, Grootenhuis MA, van Mourik R, Maurice-Stam H, Breteler MHM, Gidding C, Beek LR, Granzen B, van Vuurden DG, Schouten-van Meeteren AYN, Oosterlaan J, Timed performance weaknesses on computerized tasks in pediatric brain tumor survivors: A comparison with sibling controls. CHILD NEUROPSYCHOL 2017;23 (2):208-227 [PubMed]
de Vries M, de Ruiter MA, Oostrom KJ, Schouten-van Meeteren AYN, Maurice-Stam H, Oosterlaan J, Grootenhuis MA, The association between the behavior rating inventory of executive functioning and cognitive testing in children diagnosed with a brain tumor. CHILD NEUROPSYCHOL 2017;ahead of print [PubMed]
Diederen K, Haverman L , Grootenhuis MA, Benninga MA, Kindermann A, Parental Distress and Quality of Life in Pediatric Inflammatory Bowel Disease: Implications for the Outpatient Clinic. J PEDIATR GASTR NUTR 2017;ahead of print [PubMed]
Fardell JE, Vetsch J, Trahair T, Mateos MK, Grootenhuis MA, Touyz LM, Marshall GM, Wakefield CE, Health-related quality of life of children on treatment for acute lymphoblastic leukemia: A systematic review. PEDIATR BLOOD CANCER 2017;ahead of print [PubMed]
Groothoff JW, Offringa M, Grootenhuis M, Jager KJ, Long-term consequences of renal insufficiency in children: lessons learned from the Dutch LERIC study. NEPHROL DIAL TRANSPL 2017;ahead of print [PubMed]
Haverman L, Limperg PF, Young NL, Grootenhuis MA, Klaassen RJ, Paediatric health-related quality of life: what is it and why should we measure it?. ARCH DIS CHILD 2017;102 (5):393-400 [PubMed]
Jagt-van Kampen CT, Colenbrander DA, Bosman DK, Grootenhuis MA, Kars MC, Schouten-van Meeteren AYN, Aspects and Intensity of Pediatric Palliative Case Management Provided by a Hospital-Based Case Management Team. AM J HOSP PALLIAT ME 2017;-:1049909117695068 [PubMed]
Jagt-van Kampen CT, Kars MC, Colenbrander DA, Bosman DK, Grootenhuis MA, Caron HN, Schouten-van Meeteren AYN, A prospective study on the characteristics and subjects of pediatric palliative care case management provided by a hospital based palliative care team. BMC PALLIAT CARE 2017;16 (1):1 [PubMed]
Limperg PF. Growing up with hemophilia: health related quality of life and psychosocial functioning. S.l.: s.n.; 2017. 262p. ISBN 9789462336209 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Grootenhuis MA; copromotor(s): Peters M, Haverman L)
Limperg PF, Haverman L, Beijlevelt M, van der Pot M, Zaal G, de Boer WA, Fijnvandraat K, Peters M, Grootenhuis MA, Psychosocial care for children with haemophilia and their parents in the Netherlands. HAEMOPHILIA 2017;23 (3):362-369 [PubMed]
Limperg PF, Haverman L, Maurice-Stam H, Coppens M, Valk C, Kruip MJHA, Eikenboom J, Peters M, Grootenhuis MA, Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders. QUAL LIFE RES 2017;ahead of print [PubMed]
Limperg PF, Terwee CB, Young NL, Price VE, Gouw SC, Peters M, Grootenhuis MA, Blanchette V, Haverman L, Health-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties. HAEMOPHILIA 2017;23 (4):497-510 [PubMed]
Marchal JP. Growing up with Down syndrome: The developing child and its parents. S.l.: s.n.; 2017. 194p. ISBN 978-94-6233-545-5 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Grootenhuis MA, van Goudoever JB; copromotor(s): van Trotsenburg ASP)
Marchal JP, van Oers HA, Maurice-Stam H, Grootenhuis MA, van Trotsenburg ASP, Haverman L, Distress and everyday problems in Dutch mothers and fathers of young adolescents with Down syndrome. RES DEV DISABIL 2017;67:19-27 [PubMed]
Schepers SA. Changing pediatric cancer care: development and implementation of electronic patient and parent reported outcomes. S.l.: s.n.; 2017. 236p. ISBN 978-94-6233-479-3 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Grootenhuis MA, Caron HN; copromotor(s): Verhaak CM)
Schepers SA, Sint Nicolaas SM, Haverman L , Wensing M, Schouten van Meeteren AYN, Veening MA, Caron HN, Hoogerbrugge PM, Kaspers GJL, Verhaak CM, Grootenhuis MA, Real-world implementation of electronic patient-reported outcomes in outpatient pediatric cancer care. PSYCHO-ONCOLOGY 2017;26 (7):951-959 [PubMed]
Schepers SA, Sint Nicolaas SM, Maurice-Stam H, Haverman L , Verhaak CM, Grootenhuis MA, Parental distress 6 months after a pediatric cancer diagnosis in relation to family psychosocial risk at diagnosis. CANCER-AM CANCER SOC 2017;ahead of print [PubMed]
Schepers SA, Sint Nicolaas SM, Maurice-Stam H, van Dijk-Lokkart EM, van den Bergh EMM, de Boer N, Verhaak CM, Grootenhuis MA, First experience with electronic feedback of the Psychosocial Assessment Tool in pediatric cancer care. SUPPORT CARE CANCER 2017;25 (10):3113-3121 [PubMed]
Schepers SA, van Oers HA, Maurice-Stam H, Huisman J, Verhaak CM, Grootenhuis MA, Haverman L, Health related quality of life in Dutch infants, toddlers, and young children. HEALTH QUAL LIFE OUT 2017;15 (1):81 [PubMed]
Sint Nicolaas SM, Schepers SA, van den Bergh EMM, de Boer Y, Streng I, van Dijk-Lokkart EM, Grootenhuis MA, Verhaak CM, Match of psychosocial risk and psychosocial care in families of a child with cancer. PEDIATR BLOOD CANCER 2017;64 (12):e26687 [PubMed]
Steur LMH, Visser EH, Grootenhuis MA, Terwee CB, Kaspers GJL, van Litsenburg RRL, Psychometric properties and Dutch norm values of the Children's Sleep Habits Questionnaire in toddlers. SLEEP MED 2017;34:57-63 [PubMed]
Tenniglo LJA, Loeffen EAH, Kremer LCM, Font-Gonzalez A, Mulder RL, Postma A, Naafs-Wilstra MC, Grootenhuis MA, van de Wetering MD, Tissing WJE, Patients' and parents' views regarding supportive care in childhood cancer. SUPPORT CARE CANCER 2017;25 (10):3151-3160 [PubMed]
van Oers HA, Schepers SA, Grootenhuis MA, Haverman L, Dutch normative data and psychometric properties for the Distress Thermometer for Parents. QUAL LIFE RES 2017;26 (1):177-182 [PubMed]
Verberne LM, Kars MC, Schouten-van Meeteren AYN, Bosman DK, Colenbrander DA, Grootenhuis MA, van Delden JJM, Aims and tasks in parental caregiving for children receiving palliative care at home: a qualitative study. EUR J PEDIATR 2017;176 (3):343-354 [PubMed]
Verberne LM, Schouten-van Meeteren AYN, Bosman DK, Colenbrander DA, Jagt CT, Grootenhuis MA, van Delden JJM, Kars MC, Parental experiences with a paediatric palliative care team: A qualitative study. PALLIATIVE MED 2017;-:269216317692682 [PubMed]
de Ruiter MA. Impact of a pediatric brain tumor: Research into neurocognitive late effects and psychosocial consequences and the evaluation of a potential intervention. S.l.: s.n.; 2016. 201p. ISBN 9789462334700 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Grootenhuis MA, Oosterlaan J; copromotor(s): Caron HN, Schouten-van Meeteren AYN)
de Ruiter MA, Oosterlaan J, Schouten-van Meeteren AYN, Maurice-Stam H, van Vuurden DG, Gidding C, Beek LR, Granzen B, Caron HN, Grootenhuis MA, Neurofeedback ineffective in paediatric brain tumour survivors: Results of a double-blind randomised placebo-controlled trial. EUR J CANCER 2016;64:62-73 [PubMed]
de Ruiter MA, Schouten-van Meeteren AYN, van Vuurden DG, Maurice-Stam H, Gidding C, Beek LR, Granzen B, Oosterlaan J, Grootenhuis MA, Psychosocial profile of pediatric brain tumor survivors with neurocognitive complaints. QUAL LIFE RES 2016;25 (2):435-446 [PubMed]
Font-Gonzalez A, Feijen EL, Sieswerda E, van Dulmen-den Broeder E, Grootenhuis M, Maurice-Stam H, Caron H, Essink-Bot ML, van der Pal H, Geskus R, Kremer L, Social outcomes in adult survivors of childhood cancer compared to the general population: linkage of a cohort with population registers. PSYCHO-ONCOLOGY 2016;25 (8):933-941 [PubMed]
Haverman L , Grootenhuis MA, Raat H, van Rossum MAJ, van Dulmen-den Broeder E, Hoppenbrouwers K, Correia H, Cella D, Roorda LD, Terwee CB, Dutch-Flemish translation of nine pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)®. QUAL LIFE RES 2016;25 (3):761-765 [PubMed]
Limperg PF, Haverman L, Peters M, Grootenhuis MA, Psychosocial functioning of mothers of boys with haemophilia. HAEMOPHILIA 2016;22 (1):e57-e60 [PubMed]
Limperg P, Peters M, Gibbons E, Coppens M, Valk C, Grootenhuis M, Haverman L, Themes in daily life of adolescents and young adults with congenital bleeding disorders: a qualitative study. HAEMOPHILIA 2016;22 (4):e330-e333 [PubMed]
Marchal JP, Maurice-Stam H, Houtzager BA , Rutgers van Rozenburg-Marres SL, Oostrom KJ, Grootenhuis MA, van Trotsenburg ASP, Growing up with Down syndrome: Development from 6 months to 10.7 years. RES DEV DISABIL 2016;59:437-450 [PubMed]
Marchal JP, Maurice-Stam H, van Trotsenburg ASP, Grootenhuis MA, Mothers and fathers of young Dutch adolescents with Down syndrome: Health related quality of life and family functioning. RES DEV DISABIL 2016;59:359-369 [PubMed]
Schepers SA, Haverman L , Zadeh S, Grootenhuis MA, Wiener L, Healthcare Professionals' Preferences and Perceived Barriers for Routine Assessment of Patient-Reported Outcomes in Pediatric Oncology Practice: Moving Toward International Processes of Change. PEDIATR BLOOD CANCER 2016;63 (12):2181-2188 [PubMed]
Sint Nicolaas SM, Schepers SA, Hoogerbrugge PM, Caron HN, Kaspers GJL, van den Heuvel-Eibrink MM, Grootenhuis MA, Verhaak CM, Screening for Psychosocial Risk in Dutch Families of a Child With Cancer: Reliability, Validity, and Usability of the Psychosocial Assessment Tool. J PEDIATR PSYCHOL 2016;41 (7):810-819 [PubMed]
Sint Nicolaas SM, Schepers SA, van den Bergh EMM, Evers AWM, Hoogerbrugge PM, Grootenhuis MA, Verhaak CM, Illness cognitions and family adjustment: psychometric properties of the Illness Cognition Questionnaire for parents of a child with cancer. SUPPORT CARE CANCER 2016;24 (2):529-537 [PubMed]
Tjaden LA. Patient reported and clinical outcomes in paediatric end stage renal disease: Understanding factors affecting quality of life, access to transplantation and mortality. S.l.: s.n.; 2016. 226p. ISBN 978-94-028-0194-1 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Grootenhuis MA, Jager KJ; copromotor(s): Groothoff JW, Noordzij M)
Tjaden LA, Grootenhuis MA, Noordzij M, Groothoff JW, Health-related quality of life in patients with pediatric onset of end-stage renal disease: state of the art and recommendations for clinical practice. PEDIATR NEPHROL 2016;31 (10):1579-1591 [PubMed]
Tjaden LA, Maurice-Stam H, Grootenhuis MA, Jager KJ, Groothoff JW, Impact of Renal Replacement Therapy in Childhood on Long-Term Socioprofessional Outcomes: A 30-year Follow-Up Study. J PEDIATR-US 2016;171:189-95.e1-2 [PubMed]
van Dijk-Lokkart EM, Braam KI, van Dulmen-den Broeder E, Kaspers GJL, Takken T, Grootenhuis MA, Streng IC, Bierings M, Merks JH, van den Heuvel-Eibrink MM, Veening MA, Huisman J, Effects of a combined physical and psychosocial intervention program for childhood cancer patients on quality of life and psychosocial functioning: results of the QLIM randomized clinical trial. PSYCHO-ONCOLOGY 2016;25 (7):815-822 [PubMed]
Houtzager BA , Möller EL, Maurice-Stam H, Last BF, Grootenhuis MA, Parental perceptions of child vulnerability in a community-based sample: Association with chronic illness and health-related quality of life. J CHILD HEALTH CARE 2015;19 (4):454-465 [PubMed]
Kazak AE, Abrams AN, Banks J, Christofferson J, DiDonato S, Grootenhuis MA, Kabour M, Madan-Swain A, Patel SK, Zadeh S, Kupst MJ, Psychosocial Assessment as a Standard of Care in Pediatric Cancer. PEDIATR BLOOD CANCER 2015;62 (Suppl. 5):S426-S459 [PubMed]
Limperg PF, Peters M, Colland VT, van Ommen CH, Beijlevelt M, Grootenhuis MA, Haverman L, Reliability, validity and evaluation of the haemophilia coping and perception test. HAEMOPHILIA 2015;21 (3):e243-e246 [PubMed]
Santana MJ, Haverman L , Absolom K, Takeuchi E, Feeny D, Grootenhuis M, Velikova G, Training clinicians in how to use patient-reported outcome measures in routine clinical practice. QUAL LIFE RES 2015;24 (7):1707-1718 [PubMed]
Scholten L , Willemen AM, Napoleone E, Maurice-Stam H, Last BF, van Dijk-Lokkart EM, Zandbelt N, Ensink E, Grootenhuis MA, Schuengel C, Moderators of the efficacy of a psychosocial group intervention for children with chronic illness and their parents: what works for whom?. J PEDIATR PSYCHOL 2015;40 (2):214-227 [PubMed]
Schoot RA, Slater O, Ronckers CM, Zwinderman AH, Balm AJM, Hartley B, van den Brekel MW, Gupta S, Saeed P, Gajdosova E, Pieters BR, Gaze MN, Mandeville HC, Fajardo RD, Chang YCi, Gains JE, Strackee SD, Dunaway D, Abela C, Mason C, Smeele LE, Chisholm JC, Levitt GA, Kremer LCM, Grootenhuis MA, Maurice-Stam H, Stiller CA, Hammond P, Caron HN, Merks JHM, Adverse events of local treatment in long-term head and neck rhabdomyosarcoma survivors after external beam radiotherapy or AMORE treatment. EUR J CANCER 2015;51 (11):1424-1434 [PubMed]
van der Land V, Hijmans CT , de Ruiter M, Mutsaerts HJMM, Cnossen MH, Engelen M, Majoie CBLM, Nederveen AJ, Grootenhuis MA, Fijnvandraat K, Volume of white matter hyperintensities is an independent predictor of intelligence quotient and processing speed in children with sickle cell disease. BRIT J HAEMATOL 2015;168 (4):553-556 [PubMed]
van Dijk-Lokkart EM, Braam KI, Huisman J, Kaspers GJL, Takken T, Veening MA, Bierings M, Merks JH, Grootenhuis MA, van den Heuvel-Eibrink M, Streng IC, van Dulmen-den Broeder E, Factors influencing childhood cancer patients to participate in a combined physical and psychosocial intervention program: Quality of Life in Motion. PSYCHO-ONCOLOGY 2015;24 (4):465-471 [PubMed]
van Dijk-Lokkart EM, Braam KI, Kaspers GJL, van Dulmen-den Broeder E, Takken T, Grootenhuis MA, Streng IC, Bierings M, Merks JH, van den Heuvel-Eibrink MM, Veening MA, Huisman J, Applicability and evaluation of a psychosocial intervention program for childhood cancer patients. SUPPORT CARE CANCER 2015;23 (8):2327-2333 [PubMed]
van Dijk M, de Vries GJ, Last BF, Benninga MA, Grootenhuis MA, Parental child-rearing attitudes are associated with functional constipation in childhood. ARCH DIS CHILD 2015;100 (4):329-333 [PubMed]
van Meijel EPM, Gigengack MR, Verlinden E , Opmeer BC, Heij HA, Goslings JC, Bloemers FW, Luitse JSK, Boer F, Grootenhuis MA, Lindauer RJL, Predicting posttraumatic stress disorder in children and parents following accidental child injury: evaluation of the Screening Tool for Early Predictors of Posttraumatic Stress Disorder (STEPP). BMC PSYCHIATRY 2015;15 (1):113 [PubMed]
Verhoof EJA. Consequences of success in pediatrics: young adults with disability benefits as a result of chronic conditions since childhood. S.l.: s.n.; 2015. 265p. ISBN 978-94-6108-961-8 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Heymans HSA, Grootenhuis MA; copromotor(s): Maurice-Stam H)
Wakefield CE, Sansom-Daly UM, McGill BC, McCarthy M, Girgis A, Grootenhuis M, Barton B, Patterson P, Osborn M, Lowe C, Anazodo A, Miles G, Cohn RJ, Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: study protocol for a randomised controlled trial. TRIALS 2015;16 (1):153 [PubMed]
Hatzmann J , Peek N, Heymans H, Maurice-Stam H, Grootenhuis M, Consequences of caring for a child with a chronic disease: Employment and leisure time of parents. J CHILD HEALTH CARE 2014;18 (4):346-357 [PubMed]
Haverman L , Limperg PF, van Oers HA, van Rossum MAJ, Maurice-Stam H, Grootenhuis MA, Psychometric properties and Dutch norm data of the PedsQL Multidimensional Fatigue Scale for Young Adults. QUAL LIFE RES 2014;23 (10):2841-2847 [PubMed]
Haverman L, van Oers HA, Limperg PF, Hijmans CT, Schepers SA, Sint Nicolaas SM, Verhaak CM, Bouts AHM, Fijnvandraat K, Peters M, Van Rossum MA , van Goudoever JB, Maurice-Stam H, Grootenhuis MA, Implementation of Electronic Patient Reported Outcomes in Pediatric Daily Clinical Practice: The KLIK Experience. CLIN PRACT PEDIATR PSYCHOL 2014;2 (1):50-67
Haverman L , van Oers HA, Maurice-Stam H, Kuijpers TW, Grootenhuis MA, van Rossum MA, Health related quality of life and parental perceptions of child vulnerability among parents of a child with juvenile idiopathic arthritis: results from a web-based survey. PEDIATR RHEUMATOL 2014;12:34 [PubMed]
Limperg PF, Haverman L , van Oers HA, van Rossum MAJ, Maurice-Stam H, Grootenhuis MA, Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version. HEALTH QUAL LIFE OUT 2014;12 (1):9 [PubMed]
Marchal JP, Maurice-Stam H, Ikelaar NA, Klouwer FCC, Verhorstert KWJ, Witteveen ME, Houtzager BA , Grootenhuis MA, van Trotsenburg ASP, Effects of early thyroxine treatment on development and growth at age 10.7 years: follow-up of a randomized placebo-controlled trial in children with Down's syndrome. J CLIN ENDOCR METAB 2014;99 (12):E2722-E2729 [PubMed]
Maurice-Stam H, Scholten L , de Gee EA, van der Zanden RA, Conijn B, Last BF, Grootenhuis MA, Feasibility of an Online Cognitive Behavioral-Based Group Intervention for Adolescents Treated for Cancer: A Pilot Study. J PSYCHOSOC ONCOL 2014;32 (3):310-321 [PubMed]
Schepers SA, Engelen VE, Haverman L, Caron HN, Hoogerbrugge PM, Kaspers GJL, Egeler RM, Grootenhuis MA, Patient reported outcomes in pediatric oncology practice: suggestions for future usage by parents and pediatric oncologists. PEDIATR BLOOD CANCER 2014;61 (9):1707-1710 [PubMed]
Schoenmaker NJ, Haverman L , Tromp WF, van der Lee JH, Offringa M, Adams B, Bouts AHM, Collard L, Cransberg K, van Dyck M, Godefroid N, van Hoeck K, Koster-Kamphuis L, Lilien MR, Raes A, Taylan C, Grootenhuis MA, Groothoff JW, Children of non-Western origin with end-stage renal disease in the Netherlands, Belgium and a part of Germany have impaired health-related quality of life compared with Western children. NEPHROL DIAL TRANSPL 2014;29 (2):448-457 [PubMed]
Teunissen M, Hijmans CT , Cnossen MH, Bronner MB, Grootenhuis MA, Peters M, Quality of life and behavioral functioning in Dutch pediatric patients with hereditary spherocytosis. EUR J PEDIATR 2014;173 (9):1217-1223 [PubMed]
Tjaden LA, Vogelzang J, Jager KJ, van Stralen KJ, Maurice-Stam H, Grootenhuis MA, Groothoff JW, Long-term quality of life and social outcome of childhood end-stage renal disease. J PEDIATR-US 2014;165 (2):336-342.e1 [PubMed]
van Oers HA, Haverman L, Limperg PF, van Dijk-Lokkart EM, Maurice-Stam H, Grootenhuis MA, Anxiety and depression in mothers and fathers of a chronically ill child. MATERN CHILD HLTH J 2014;18 (8):1993-2002 [PubMed]
van Oers HA, Tacke CE, Haverman L , Kuipers IM, Maurice-Stam H, Kuijpers TW, Grootenhuis MA, Health related quality of life and perceptions of child vulnerability among parents of children with a history of Kawasaki disease. ACTA PAEDIATR 2014;103 (6):671-677 [PubMed]
Verhoof EJA, Maurice-Stam H, Heymans HSA, Evers AWM, Grootenhuis MA, Psychosocial well-being in young adults with chronic illness since childhood: the role of illness cognitions. CHILD ADOL PSYCH MEN 2014;8 (1):12 [PubMed]
Wicks P, Stamford J, Grootenhuis MA, Haverman L , Ahmed S, Innovations in e-health. QUAL LIFE RES 2014;23 (1):195-203 [PubMed]
Aukema EJ. Care for consequences in children treated for leukemia or brain tumor. s.l.: s.n.; 2013. 160p. ISBN 9789082006216 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Grootenhuis MA, Last BF; copromotor(s): Schouten-van Meeteren AYN, Caron HN)
Aukema EJ , Schouten-van Meeteren AYN, Last BF, Maurice-Stam H, Grootenhuis MA, Childhood Brain Tumor Survivors at Risk for Impaired Health-related Quality of Life. J PEDIAT HEMATOL ONC 2013;35 (8):603-609 [PubMed]
Demirdas S, Maurice-Stam H, Boelen CCA, Hofstede FC, Janssen MCH, Langendonk JG, Mulder MF, Rubio-Gozalbo ME, van Spronsen FJ, de Vries M, Grootenhuis MA, Bosch AM, Evaluation of quality of life in PKU before and after introducing tetrahydrobiopterin (BH4); a prospective multi-center cohort study. MOL GENET METAB 2013;110 (Suppl):S49-S56 [PubMed]
de Ruiter MA, van Mourik R, Schouten-van Meeteren AYN, Grootenhuis MA, Oosterlaan J, Neurocognitive consequences of a paediatric brain tumour and its treatment: a meta-analysis. DEV MED CHILD NEUROL 2013;55 (5):408-417 [PubMed]
Haverman L. Electronic patient and parent reported outcomes in pediatric clinical practice. s.l.: s.n.; 2013. 261p. ISBN 9789090273310 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Grootenhuis MA, Kuijpers TW; copromotor(s): van Rossum MAJ)
Haverman L , van Oers HA, Limperg PF, Houtzager BA , Huisman J, Darlington AS, Maurice-Stam H, Grootenhuis MA, Development and validation of the distress thermometer for parents of a chronically ill child. J PEDIATR-US 2013;163 (4):1140-6.e2 [PubMed]
Haverman L , van Rossum MAJ, van Veenendaal M, van den Berg JM, Dolman KM, Swart J, Kuijpers TW, Grootenhuis MA, Effectiveness of a web-based application to monitor health-related quality of life. PEDIATRICS 2013;131 (2):e533-e543 [PubMed]
Hummel TZ, Tak E, Maurice-Stam H, Benninga MA, Kindermann A, Grootenhuis MA, Psychosocial developmental trajectory of adolescents with inflammatory bowel disease. J PEDIATR GASTR NUTR 2013;57 (2):219-224 [PubMed]
Marchal JP, Maurice-Stam H, Hatzmann J , van Trotsenburg ASP, Grootenhuis MA, Health related quality of life in parents of six to eight year old children with Down syndrome. RES DEV DISABIL 2013;34 (11):4239-4247 [PubMed]
Maurice-Stam H, Verhoof EJ, Caron HN, Grootenhuis MA, Are survivors of childhood cancer with an unfavourable psychosocial developmental trajectory more likely to apply for disability benefits?. PSYCHO-ONCOLOGY 2013;22 (3):708-714 [PubMed]
Scholten L , Willemen AM, Last BF, Maurice-Stam H, van Dijk EM, Ensink E, Zandbelt N, van der Hoop-Mooij A, Schuengel C, Grootenhuis MA, Efficacy of Psychosocial Group Intervention for Children With Chronic Illness and Their Parents. PEDIATRICS 2013;131 (4):E1196-E1203 [PubMed]
van der Sluijs Veer L. Psychological consequences of congenital hypothyroidism. Cognitive, motor and psychosocial functioning. s.l.: s.n.; 2013. 208p. ISBN 9789090275505 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Grootenhuis MA, Last BF; copromotor(s): Vulsma T)
Verhoof E, Maurice-Stam H, Heymans H, Grootenhuis M, Health-related quality of life, anxiety and depression in young adults with disability benefits due to childhood-onset somatic conditions. CHILD ADOL PSYCH MEN 2013;7 (1):12 [PubMed]
Bennebroek Evertsz' F, Thijssens NAM, Stokkers PCF, Grootenhuis MA, Bockting CLH, Nieuwkerk PT, Sprangers MAG, Do Inflammatory Bowel Disease patients with anxiety and depressive symptoms receive the care they need?. J CROHNS COLITIS 2012;6 (1):68-76 [PubMed]
de Ruiter MA, Schouten-van Meeteren AYN, van Mourik R, Janssen TWP, Greidanus JEM, Oosterlaan J, Grootenhuis MA, Neurofeedback to improve neurocognitive functioning of children treated for a brain tumor: design of a randomized controlled double-blind trial. BMC CANCER 2012;12 (1):581 [PubMed]
Engelen V , Detmar S, Koopman H, Maurice-Stam H, Caron H, Hoogerbrugge P, Egeler RM, Kaspers G, Grootenhuis M, Reporting health-related quality of life scores to physicians during routine follow-up visits of pediatric oncology patients: Is it effective?. PEDIATR BLOOD CANCER 2012;58 (5):766-774 [PubMed]
Engelen V , van Zwieten M, Koopman H, Detmar S, Caron H, Brons P, Egeler M, Kaspers GJ, Grootenhuis M, The influence of patient reported outcomes on the discussion of psychosocial issues in children with cancer. PEDIATR BLOOD CANCER 2012;59 (1):161-166 [PubMed]
Haverman L, Grootenhuis MA, van den Berg JM, van Veenendaal M, Dolman KM, Swart JF, Kuijpers TW, van Rossum MAJ, Predictors of Health-Related Quality of Life in Children and Adolescents With Juvenile Idiopathic Arthritis: Results From a Web-Based Survey. ARTHRIT CARE RES 2012;64 (5):694-703 [PubMed]
Haverman L , Verhoof EJ, Maurice-Stam H, Heymans HSA, Gerlag DM, van Rossum MAJ, Grootenhuis MA, Health-related quality of life and psychosocial developmental trajectory in young female beneficiaries with JIA. RHEUMATOLOGY 2012;51 (2):368-374 [PubMed]
Hijmans CT. Mind patterns in pediatric sickle cell disease. Evaluation of neurocognitive deficits, behavioral and emotional problems and health-related quality of llife. S.l.: s.n.; 2012. 157p. [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Kuijpers TW, Oosterlaan J; copromotor(s): Grootenhuis MA, Fijnvandraat CJ)
Tacke CE, Haverman L , Berk BM, van Rossum MA, Kuipers IM, Grootenhuis MA, Kuijpers TW, Quality of Life and Behavioral Functioning in Dutch Children with a History of Kawasaki Disease. J PEDIATR-US 2012;161 (2):314-+ [PubMed]
van der Sluijs Veer L, Kempers MJE, Wiedijk BM, Last BF, Grootenhuis MA, Vulsma T, Evaluation of Cognitive and Motor Development in Toddlers With Congenital Hypothyroidism Diagnosed by Neonatal Screening. J DEV BEHAV PEDIATR 2012;33 (8):633-640 [PubMed]
van der Sluijs Veer L, Kempers MJ, Maurice-Stam H, Last BF, Vulsma T, Grootenhuis MA, Health- related quality of life and self-worth in 10-year old children with congenital hypothyroidism diagnosed by neonatal screening. CHILD ADOL PSYCH MEN 2012;6 (1):32 [PubMed]
Verberne LM, Maurice-Stam H, Grootenhuis MA, van Santen HM, Schouten-van Meeteren AYN, Sleep disorders in children after treatment for a CNS tumour. J SLEEP RES 2012;21 (4):461-469 [PubMed]
Verhoof E, Maurice-Stam H, Heymans H, Grootenhuis M, Growing into disability benefits? Psychosocial course of life of young adults with a chronic somatic disease or disability. ACTA PAEDIATR 2012;101 (1):E19-E26 [PubMed]
Aukema EJ , Last BF, Schouten-van Meeteren AYN, Grootenhuis MA, Explorative study on the aftercare of pediatric brain tumor survivors: a parents' perspective. SUPPORT CARE CANCER 2011;19 (10):1637-1646 [PubMed]
Bouwman MG, Maurice-Stam H, Linthorst GE, Hollak CEM, Wijburg FA, Grootenhuis MA, Impact of growing up with Fabry disease on achievement of psychosocial milestones and quality of life. MOL GENET METAB 2011;104 (3):308-313 [PubMed]
Engelen V. Monitoring quality of life in paediatric oncology practice. s.l.: s.n.; 2011. 173p. [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Caron HN; copromotor(s): Grootenhuis MA, Detmar SB, Koopman HM)
Engelen V, Koopman HM, Detmar SB, Raat H, van de Wetering MD, Brons P, Anninga JK, Abbink F, Grootenhuis MA, Health-Related Quality of Life After Completion of Successful Treatment for Childhood Cancer. PEDIATR BLOOD CANCER 2011;56 (4):646-653 [PubMed]
Gubbels CS, Maurice-Stam H, Berry GT, Bosch AM, Waisbren S, Rubio-Gozalbo ME, Grootenhuis MA, Psychosocial developmental milestones in men with classic galactosemia. J INHERIT METAB DIS 2011;34 (2):415-419 [PubMed]
Haverman L , Engelen V , van Rossum MAJ, Heymans HSA, Grootenhuis MA, Monitoring Health Related Quality of Life in paediatric practice: development of an innovative web-based application. BMC PEDIATR 2011;11 (1):3 [PubMed]
Hijmans CT , Fijnvandraat K, Grootenhuis MA, van Geloven N, Heijboer H, Peters M, Oosterlaan J, Neurocognitive Deficits in Children With Sickle Cell Disease: A Comprehensive Profile. PEDIATR BLOOD CANCER 2011;56 (5):783-788 [PubMed]
Hijmans CT , Grootenhuis MA, Oosterlaan J, Heijboer H, Peters M, Fijnvandraat K, Neurocognitive Deficits in Children With Sickle Cell Disease Are Associated With the Severity of Anemia. PEDIATR BLOOD CANCER 2011;57 (2):297-302 [PubMed]
Hoornweg MJ, Grootenhuis MA, Smeulders MJC, van der Horst CMAM, The Impact of Haemangiomas. EUR PAEDIAT 2011;5 (Summer):65-68
Maurice-Stam H, Broek A, Kolk AMM, Vrijmoet-Wiersma JMJ, Meijer-van den Bergh E, van Dijk EM, Phipps S, Grootenhuis MA, Measuring perceived benefit and disease-related burden in young cancer survivors: validation of the Benefit and Burden Scale for Children (BBSC) in The Netherlands. SUPPORT CARE CANCER 2011;19 (8):1249-1253 [PubMed]
Patenaude AF, Grootenhuis M, Noll R, Pediatric psycho-oncology comes of age: SIOP 2010. PEDIATR BLOOD CANCER 2011;56 (7):1154 [PubMed]
Scholten L , Willemen AM, Grootenhuis MA, Maurice-Stam H, Schuengel C, Last BF, A cognitive behavioral based group intervention for children with a chronic illness and their parents: a multicentre randomized controlled trial. BMC PEDIATR 2011;11 (1):65 [PubMed]
ten Hoedt AE, Maurice-Stam H, Boelen CCA, Rubio-Gozalbo ME, van Spronsen FJ, Wijburg FA, Bosch AM, Grootenhuis MA, Parenting a child with phenylketonuria or galactosemia: implications for health-related quality of life. J INHERIT METAB DIS 2011;34 (2):391-398 [PubMed]
Valstar MJ, Marchal JP, Grootenhuis M, Colland V, Wijburg FA, Cognitive development in patients with Mucopolysaccharidosis type III (Sanfilippo syndrome). ORPHANET J RARE DIS 2011;6 (1):43 [PubMed]
van Dijk M. Behavioral therapy for functional constipation in childhood. Health-related quality of life, emotional and behavior problems & parental child-rearing attitudes. s.l.: s.n.; 2011. 136p. ISBN 9789491211829 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Last BF, Benninga MA; copromotor(s): Grootenhuis MA)
Braam KI, van Dijk EM, Veening MA, Bierings MB, Merks JHM, Grootenhuis MA, Chinapaw MJM, Sinnema G, Takken T, Huisman J, Kaspers GJL, van Dulmen-den Broeder E, Design of the Quality of Life in Motion (QLIM) study: a randomized Controlled Trial to evaluate the effectiveness and cost-effectiveness of a combined physical exercise and psychosocial training program to improve physical fitness in children with cancer. BMC CANCER 2010;10 (1):624 [PubMed]
Bronner MB, Peek N, Knoester H, Bos AP, Last BF, Grootenhuis MA, Course and Predictors of Posttraumatic Stress Disorder in Parents after Pediatric Intensive Care Treatment of their Child. J PEDIATR PSYCHOL 2010;35 (9):966-974 [PubMed]
Engelen V , Haverman L , Koopman H, Schouten-van Meeteren N, Meijer-van den Bergh E, Vrijmoet-Wiersma J, van Dijk EM, Last B, Detmar S, Grootenhuis M, Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice. PATIENT EDUC COUNS 2010;81 (2):235-244 [PubMed]
Haverman L, Engelen V, van Rossum MAJ, Heymans HSA, Grootenhuis MA, Kwaliteit van Leven in Kaart (KLIK): De eerste toepassing van een web-based terugkoppeling van kwaliteit-van-leven-gegevens bij kinderen. TIJDSCHR KINDERGENEESKD 2010;78 (6):220-227
Hijmans CT , Fijnvandraat K, Oosterlaan J, Heijboer H, Peters M, Grootenhuis MA, Double disadvantage: a case control study on health-related quality of life in children with sickle cell disease. HEALTH QUAL LIFE OUT 2010;8 (1):121 [PubMed]
Klassen AF, Strohm SJ, Maurice-Stam H, Grootenhuis MA, Quality of life questionnaires for children with cancer and childhood cancer survivors: a review of the development of available measures. SUPPORT CARE CANCER 2010;18 (9):1207-1217 [PubMed]
van Dijk M, Benninga MA, Grootenhuis MA, Last BF, Prevalence and Associated Clinical Characteristics of Behavior Problems in Constipated Children. PEDIATRICS 2010;125 (2):E309-E317 [PubMed]
Vrijmoet-Wiersma CMJ, Egeler RM, Koopman HM, Bresters D, Norberg AL, Grootenhuis MA, Parental stress and perceived vulnerability at 5 and 10 years after pediatric SCT. BONE MARROW TRANSPL 2010;45 (6):1102-1108 [PubMed]
Vrijmoet-Wiersma CMJ, Hoekstra-Weebers JEHM, Margreet de Peinder WMG, Koopman HM, Tissing WJE, Treffers PDA, Bierings MB, Jansen NCA, Grootenhuis MA, Egeler RM, Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi-center study. PSYCHO-ONCOLOGY 2010;19 (4):368-375 [PubMed]
Vrijmoet-Wiersma J. Child and parental adaptation to pediatric oncology. s.l.: s.n.; 2010. -p. Proefschrift Universiteit Leiden, Geneeskunde. (Promotor(s): Egeler RM; copromotor(s): Grootenhuis MA, Koopman HM)
Aukema EJ , Caan MWA, Oudhuis N, Majoie CBLM, Vos FM, Reneman L, Last BF, Grootenhuis MA, Schouten-van Meeteren AYN, White matter fractional anisotropy correlates with speed of processing and motor speed in young childhood cancer survivors. INT J RADIAT ONCOL 2009;74 (3):837-843 [PubMed]
Bongers MEJ, Benninga MA, Maurice-Stam H, Grootenhuis MA, Health-related Quality of Life in young adults with continuing symptoms of childhood constipation. HEALTH QUAL LIFE OUT 2009;7 (1):20 [PubMed]
Bongers MEJ, van Dijk M, Benninga MA, Grootenhuis MA, Health Related Quality of Life in Children with Constipation-Associated Fecal Incontinence. J PEDIATR-US 2009;154 (5):749-753 [PubMed]
Bosch AM, Maurice-Stam H, Wijburg FA, Grootenhuis MA, Remarkable differences: the course of life of young adults with galactosaemia and PKU. J INHERIT METAB DIS 2009;32 (6):706-712 [PubMed]
Brenninkmeijer EEA, Legierse CM, Sillevis Smitt JH, Last BF, Grootenhuis MA, Bos JD, The Course of Life of Patients with Childhood Atopic Dermatitis. PEDIATR DERMATOL 2009;26 (1):14-22 [PubMed]
Bronner MB. TraumatIC. The psychological impact of pediatric intensive care treatment. s.l.: s.n.; 2009. 168p. [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Heymans HSA, Last BF; copromotor(s): Grootenhuis MA, Bos AP)
Bronner MB, Beer R, Jozine van Zelm van Eldik M, Grootenhuis MA, Last BF, Reducing acute stress in a 16-year old using trauma-focused cognitive behaviour therapy and eye movement desensitization and reprocessing. DEV NEUROREHABIL 2009;12 (3):170-174 [PubMed]
Bronner MB, Kayser AM, Knoester H, Bos AP, Last BF, Grootenhuis MA, A pilot study on peritraumatic dissociation and coping styles as risk factors for posttraumatic stress, anxiety and depression in parents after their child's unexpected admission to a Pediatric Intensive Care Unit. CHILD ADOL PSYCH MEN 2009;3 (1):33 [PubMed]
Bronner MB, Knoester H, Sol JJ, Bos AP, Heymans HSA, Grootenhuis MA, An explorative study on quality of life and psychological and cognitive function in pediatric survivors of septic shock. PEDIATR CRIT CARE ME 2009;10 (6):636-642 [PubMed]
Bronner MB, Peek N, Vries Md, Bronner AE, Last BF, Grootenhuis MA, A Community-Based Survey of Posttraumatic Stress Disorder in the Netherlands. J TRAUMA STRESS 2009;22 (1):74-78 [PubMed]
Engelen V , Haentjens MM, Detmar SB, Koopman HM, Grootenhuis MA, Health related quality of life of Dutch children: psychometric properties of the PedsQL in the Netherlands. BMC PEDIATR 2009;9 (1):68 [PubMed]
Grootenhuis MA, Bronner MB, Paediatric illness! Family matters. ACTA PAEDIATR 2009;98 (6):940-941 [PubMed]
Grootenhuis MA, Maurice-Stam H, Derkx BH, Last BF, Evaluation of a psychoeducational intervention for adolescents with inflammatory bowel disease. EUR J GASTROEN HEPAT 2009;21 (4):430-435 [PubMed]
Hatzmann J. Consequences of care. Parents of children with a chronic disease. s.l.: s.n.; 2009. 175p. [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Heymans HSA, van Praag BMS; copromotor(s): Grootenhuis MA)
Hatzmann J , Maurice-Stam H, Heymans HSA, Grootenhuis MA, A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system. HEALTH QUAL LIFE OUT 2009;7 (1):72 [PubMed]
Hatzmann J , Valstar MJ, Bosch AM, Wijburg FA, Heymans HSA, Grootenhuis MA, Predicting health-related quality of life of parents of children with inherited metabolic diseases. ACTA PAEDIATR 2009;98 (7):1205-1210 [PubMed]
Hijmans CT , Grootenhuis MA, Oosterlaan J, Last BF, Heijboer H, Peters M, Fijnvandraat K, Behavioral and Emotional Problems in Children With Sickle Cell Disease and Healthy Siblings: Multiple Informants, Multiple Measures. PEDIATR BLOOD CANCER 2009;53 (7):1277-1283 [PubMed]
Hoornweg MJ, Grootenhuis MA, van der Horst CMAM, Health-related quality of life and impact of haemangiomas on children and their parents. J PLAST RECONSTR AES 2009;62 (10):1265-1271 [PubMed]
Maurice-Stam H, Oort FJ, Last BF, Brons PPT, Caron HN, Grootenhuis MA, School-aged children after the end of successful treatment of non-central nervous system cancer: longitudinal assessment of health-related quality of life, anxiety and coping. EUR J CANCER CARE 2009;18 (4):401-410 [PubMed]
Maurice-Stam H, Oort FJ, Last BF, Grootenhuis MA, A predictive model of health-related quality of life in young adult survivors of childhood cancer. EUR J CANCER CARE 2009;18 (4):339-349 [PubMed]
Maurice-Stam H, Silberbusch LM, Last BF, Grootenhuis MA, Evaluation of a psycho-educational group intervention for children treated for cancer: a descriptive pilot study. PSYCHO-ONCOLOGY 2009;18 (7):762-766 [PubMed]
van Dijk J, Grootenhuis MA, Imhof SM, Cohen-Kettenis PT, Moll AC, Huisman J, Coping strategies of retinoblastoma survivors in relation to behavioural problems. PSYCHO-ONCOLOGY 2009;18 (12):1281-1289 [PubMed]
Vrijmoet-Wiersma CMJ, Egeler RM, Koopman HM, Norberg AL, Grootenhuis MA, Parental stress before, during, and after pediatric stem cell transplantation: a review article. SUPPORT CARE CANCER 2009;17 (12):1435-1443 [PubMed]
Vrijmoet-Wiersma CMJ, Kolk AM, Grootenhuis MA, Spek EM, van Klink JMM, Egeler RM, Bredius RGM, Koopman HM, Child and parental adaptation to pediatric stem cell transplantation. SUPPORT CARE CANCER 2009;17 (6):707-714 [PubMed]
Vrijmoet-Wiersma CMJ, Kooloos VM, Koopman HM, Kolk AM, van der Laan I, Grootenhuis MA, Egeler RM, Health-related quality of life, cognitive functioning and behaviour problems in children with Langerhans cell histiocytosis. PEDIATR BLOOD CANCER 2009;52 (1):116-122 [PubMed]
Vrijmoet-Wiersma CMJ, Ottenkamp J, van Roozendaal M, Grootenhuis MA, Koopman HM, A multicentric study of disease-related stress, and perceived vulnerability, in parents of children with congenital cardiac disease. CARDIOL YOUNG 2009;19 (6):608-614 [PubMed]
Bongers MEJ. Childhood constipation. Treatment, long-term prognosis and quality of life. s.l.: s.n.; 2008. 218p. ISBN 9789090234076 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Heymans HSA; copromotor(s): Benninga MA, Grootenhuis MA)
Bronner MB, Knoester H, Bos AP, Last BF, Grootenhuis MA, Follow-up after paediatric intensive care treatment: parental posttraumatic stress. ACTA PAEDIATR 2008;97 (2):181-186 [PubMed]
Bronner MB, Knoester H, Bos AP, Last BF, Grootenhuis MA, Posttraumatic stress disorder (PTSD) in children after paediatric intensive care treatment compared to children who survived a major fire disaster. CHILD ADOL PSYCH MEN 2008;2 (1):9 [PubMed]
de Vries MAG, van Litsenburg RRL, Huisman J, Grootenhuis MA, Versluys BAB, Kaspers GJL, Gemke RJBJ, Effect of dexamethasone on quality of life in children with acute lymphoblastic leukaemia: a prospective observational study. HEALTH QUAL LIFE OUT 2008;6 (1):103 [PubMed]
Hatzmann J , Heymans HSA, Ferrer-I-Carbonell A, van Praag BMS, Grootenhuis MA, Hidden Consequences of Success in Pediatrics: Parental Health-Related Quality of Life-Results From the Care Project. PEDIATRICS 2008;122 (5):E1030-E1038 [PubMed]
Hijmans CT , van Oirschot MM, Heijboer H, Peters M, Hendriks CJ, Last BF, Oosterlaan J, Grootenhuis MA, Fijnvandraat K, Neuropsychological dysfunction in children with sickle cell disease: the AANPAK project.. PEDIATR CLIN AMSTERDAM 2008;19:10-12
Knoester H. Surviving pediatric intensive care. From mortality to morbidity. s.l.: s.n.; 2008. 150p. ISBN 9789064643026 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Heymans HSA; copromotor(s): Bos AP, Grootenhuis MA)
Knoester H, Bronner MB, Bos AP, Grootenhuis MA, Quality of life in children three and nine months after discharge from a paediatric intensive care unit: a prospective cohort study. HEALTH QUAL LIFE OUT 2008;6 (1):21 [PubMed]
Linthorst Homan MW, de Korte J, Grootenhuis MA, Bos JD, Sprangers MAG, van der Veen JPW, Impact of childhood vitiligo on adult life. BRIT J DERMATOL 2008;159 (4):915-920 [PubMed]
Maurice-Stam H, Oort FJ, Last BF, Brons PPT, Caron HN, Grootenhuis MA, Longitudinal assessment of health-related quality of life in preschool children with non-CNS cancer after the end of successful treatment. PEDIATR BLOOD CANCER 2008;50 (5):1047-1051 [PubMed]
Maurice-Stam H, Oort FJ, Last BF, Grootenhuis MA, Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment. PSYCHO-ONCOLOGY 2008;17 (5):448-459 [PubMed]
Mokkink LB, van der Lee JH, Grootenhuis MA, Offringa M, Heymans HSA, Defining chronic diseases and health conditions in childhood (0-18 years of age): national consensus in the Netherlands. EUR J PEDIATR 2008;167 (12):1441-1447 [PubMed]
van den Tweel XW, Hatzmann J , Ensink E, van der Lee JH, Peters M, Fijnvandraat K, Grootenhuis M, Quality of life of female caregivers of children with sickle cell disease: a survey. HAEMATOLOGICA 2008;93 (4):588-593 [PubMed]
van der Sluijs Veer L, Kempers MJE, Last BF, Vulsma T, Grootenhuis MA, Quality of life, developmental milestones, and self-esteem of young adults with congenital hypothyroidism diagnosed by neonatal screening. J CLIN ENDOCR METAB 2008;93 (7):2654-2661 [PubMed]
van Dijk M, Bongers MEJ, de Vries GJ, Grootenhuis MA, Last BF, Benninga MA, Behavioral therapy for childhood constipation: a randomized, controlled trial. PEDIATRICS 2008;121 (5):e1334-e1341 [PubMed]
Bosch AM, Tybout W, van Spronsen FJ, de Valk HW, Wijburg FA, Grootenhuis MA, The course of life and quality of life of early and continuously treated Dutch patients with phenylketonuria. J INHERIT METAB DIS 2007;30 (1):29-34 [PubMed]
Grootenhuis MA, de Boone J, van der Kooi AJ, Living with muscular dystrophy: health related quality of life consequences for children and adults. HEALTH QUAL LIFE OUT 2007;5:31 [PubMed]
Grootenhuis MA, Koopman HM, Verrips EGH, Vogels AGC, Last BF, Health-related quality of life problems of children aged 8-11 years with a chronic disease. DEV NEUROREHABIL 2007;10 (1):27-33 [PubMed]
Kempers MJE, van der Sluijs Veer L, Nijhuis-van der Sanden RWG, Lanting CI, Kooistra L, Wiedijk BM, Last BF, de Vijlder JJM, Grootenhuis MA, Vulsma T, Neonatal screening for congenital hypothyroidism in the Netherlands: cognitive and motor outcome at 10 years of age. J CLIN ENDOCR METAB 2007;92 (3):919-924 [PubMed]
Knoester H, Grootenhuis MA, Bos AP, Outcome of paediatric intensive care survivors. EUR J PEDIATR 2007;166 (11):1119-1128 [PubMed]
Last BF, Stam H, Onland-van Nieuwenhuizen AM, Grootenhuis MA, Positive effects of a psycho-educational group intervention for children with a chronic disease: first results. PATIENT EDUC COUNS 2007;65 (1):101-112 [PubMed]
Maurice-Stam H, Grootenhuis MA, Brons PPT, Caron HN, Last BF, Psychosocial indicators of health-related quality of life in children with cancer 2 months after end of successful treatment. J PEDIAT HEMATOL ONC 2007;29 (8):540-550 [PubMed]
Maurice-Stam H, Grootenhuis MA, Caron HN, Last BF, Course of life of survivors of childhood cancer is related to quality of life in young adulthood. J PSYCHOSOC ONCOL 2007;25 (3):43-58 [PubMed]
Mokkink LB, Lee van der JH, Grootenhuis MA, Offringa M, Praag van BMS, Heymans HSA, Sociaal-maatschappelijke gevolgen en kwaliteit van leven in Nederland bij kinderen en jongvolwassenen opgegroeid met een chronische aandoening. TIJDSCHR KINDERGENEESKD 2007;75 (04):229-235
Mokkink LB, van der Lee JH, Grootenhuis MA, Offringa M, van Praag BMS, Heymans HSA, Omvang en gevolgen van chronische aandoeningen bij kinderen.. TIJDSCHR KINDERGENEESKD 2007;75 (4):138-142
Stam H. Surviving childhood cancer. Quality of life, course of life, and coping. s.l.: s.n.; 2007. 321p. [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Last BF, Caron HN; copromotor(s): Grootenhuis MA)
van der Lee JH, Mokkink LB, Grootenhuis MA, Heymans HS, Offringa M, Definitions and measurement of chronic health conditions in childhood: a systematic review. JAMA-J AM MED ASSOC 2007;297 (24):2741-2751 [PubMed]
van Dijk M, Benninga MA, Grootenhuis MA, Onland-van Niettwenhuizen AM, Last BF, Chronic childhood constipation: a review of the literature and the introduction of a protocolized behavioral intervention program. PATIENT EDUC COUNS 2007;67 (1-2):63-77 [PubMed]
Grootenhuis MA, Last BF, Children with cancer. RECENT RESULTS CANCER RES 2006;168:73-79 [PubMed]
Grootenhuis MA, Stam H, Last BF, Groothoff JW, The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood. PEDIATR NEPHROL 2006;21 (4):538-544 [PubMed]
Kempers MJE, van der Sluijs Veer L, Nijhuis-van der Sanden MWG, Kooistra L, Wiedijk BM, Faber I, Last BF, de Vijlder JJM, Grootenhuis MA, Vulsma T, Intellectual and motor development of young adults with congenital hypothyroidism diagnosed by neonatal screening. J CLIN ENDOCR METAB 2006;91 (2):418-424 [PubMed]
Maurice-Stam H, Hartman EE, Deurloo JA, Groothoff JW, Grootenhuis MA, Opgroeien met een chronische aandoening: levensloop en gevolgen in de jong volwassenheid. TIJDSCHR KINDERGENEESKD 2006;74:225-236
Raat H, Mohangoo AD, Grootenhuis MA, Pediatric health-related quality of life questionnaires in clinical trials. CURR OPIN ALLERGY CL 2006;6 (3):180-185 [PubMed]
Stam H, Grootenhuis MA, Brons PPT, Caron HN, Last BF, Health-related quality of life in children and emotional reactions of parents following completion of cancer treatment. PEDIATR BLOOD CANCER 2006;47 (3):312-319 [PubMed]
Stam H, Grootenhuis MA, Caron HN, Last BF, Quality of life and current coping in young adult survivors of childhood cancer: positive expectations about the further course of the disease were correlated with better quality of life. PSYCHO-ONCOLOGY 2006;15 (1):31-43 [PubMed]
Stam H, Hartman EE, Deurloo JA, Groothoff J, Grootenhuis MA, Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood. J ADOLESCENT HEALTH 2006;39 (1):4-13 [PubMed]
de Boer M, Grootenhuis M, Derkx B, Last B, Health-related quality of life and psychosocial functioning of adolescents with inflammatory bowel disease. INFLAMM BOWEL DIS 2005;11 (4):400-406 [PubMed]
Derkx HHF, van der Zaag-Loonen HJ, Grootenhuis MA, Last BF, Adolescenten met IBD: wat is de rol van coping en is er een relatie met hun kwaliteit van leven?. TIJDSCHR KINDERGENEESKD 2005;73 (feb):30-35
Ehrlich TR, Von Rosenstiel IA, Grootenhuis MA, Gerrits AI, Bos AP, Long-term psychological distress in parents of child survivors of severe meningococcal disease. PEDIATR REHABIL 2005;8 (3):220-223 [PubMed]
Groothoff JW, Grootenhuis MA, Offringa M, Stronks K, Hutten GJ, Heymans HSA, Social consequences in adult life of end-stage renal disease in childhood. J PEDIATR-US 2005;146 (4):512-517 [PubMed]
Houtzager BA, Grootenhuis MA, Caron HN, Last BF, Sibling self-report, parental proxies, and quality of life: the importance of multiple informants for siblings of a critically ill child. PEDIATR HEMAT ONCOL 2005;22 (1):25-40 [PubMed]
Houtzager BA, Grootenhuis MA, Hoekstra-Weebers JEHM, Last BF, One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer. CHILD CARE HLTH DEV 2005;31 (1):75-87 [PubMed]
Last BF, Grootenhuis MA, Psychosociale aspecten van zorg aan stervende kinderen. ONCOLOGICA 2005;22 (4):195-198
Last BF, Grootenhuis MA. Psychosocial issues in: Voûte PA, Barrett A, Stevens MCG, Caron HN, editors. Cancer in children: clinical management (fifth edition). Oxford: Oxford University Press; 2005., p. 101-109
Last BF, Grootenhuis MA, Eiser C, International comparison of contributions to psychosocial research on survivors of childhood cancer: Past and future considerations. J PEDIATR PSYCHOL 2005;30 (1):99-113 [PubMed]
Sibbing MHM, Kat CN, Grootenhuis MA, Last BF, Positief effect van video-interactiebegeleiding in het kinderziekenhuis. TIJDSCHR KINDERGENEESKD 2005;73 (6):209-214
Stam H, Grootenhuis MA, Last BF, The course of life of survivors of childhood cancer. PSYCHO-ONCOLOGY 2005;14 (3):227-238 [PubMed]
Bosch AM, Grootenhuis MA, Bakker HD, Heijmans HSA, Wijburg FA, Last BF, Living with classical galactosemia: health-related quality of life consequences. PEDIATRICS 2004;113 (5):E423-E428 [PubMed]
Houtzager BA. Slibings of pediatric cancer patients. Coping, risk factors and psychological health. S.l.: s.n.; 2004. 231p. [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Caron HN; copromotor(s): Last BF, Grootenhuis MA)
Houtzager BA, Grootenhuis MA, Caron HN, Last BF, Quality of life and psychological adaptation in siblings of paediatric cancer patients, 2 years after diagnosis. PSYCHO-ONCOLOGY 2004;13 (8):499-511 [PubMed]
Houtzager BA , Oort FJ, Hoekstra-Weebers JEHM, Caron HN, Grootenhuis MA, Last BF, Coping and family functioning predict longitudinal psychological adaptation of siblings of childhood cancer patients. J PEDIATR PSYCHOL 2004;29 (8):591-605 [PubMed]
Langeveld NE, Grootenhuis MA, Voûte PA, de Haan RJ, Posttraumatic stress symptoms in adult survivors of childhood cancer. PEDIATR BLOOD CANCER 2004;42 (7):604-610 [PubMed]
Langeveld NE, Grootenhuis MA, Voûte PA, de Haan RJ, van den Bos C, Quality of life, self-esteem and worries in young adult survivors of childhood cancer. PSYCHO-ONCOLOGY 2004;13 (12):867-881 [PubMed]
Last BF, Grootenhuis MA, Psychosociale kinderoncologie. TIJDSCHR ORTHOPEDAGOGIEK KINDERPSYCHIATR KLIN KINDERPSYCHOL 2004;29 (3):114-127
Last BF, Grootenhuis MA. Psychosocial interventions: the cognitive - behavioral approach in: Kreitler S, Arush MWB, editors. Psychosocial aspects of pediatric oncology. S.l.: Wiley; 2004., p. 313-334
van der Zaag-Loonen HJ, Grootenhuis MA, Last BF, Derkx HHF, Coping strategies and quality of life of adolescents with inflammatory bowel disease. QUAL LIFE RES 2004;13 (5):1011-1019 [PubMed]
Voskuijl WP, van der Zaag-Loonen HJ, Ketel IJG, Grootenhuis MA, Derkx BHF, Benninga MA, Health related quality of life in disorders of defecation: the Defecation Disorder List. ARCH DIS CHILD 2004;89 (12):1124-1127 [PubMed]
de Jongh S, Kerckhoffs MC, Grootenhuis MA, Bakker HD, Heymans HSA, Last BF, Quality of life, anxiety and concerns among statin-treated children with familial hypercholesterolaemia and their parents. ACTA PAEDIATR 2003;92 (9):1096-1101 [PubMed]
Groothoff JW, Grootenhuis MA, Offringa M, Gruppen MP, Korevaar JC, Heymans HSA, De gezondheidsbeleving van jongvolwassen patiënten met een terminale nierinsufficiëntie sinds de kinderleeftijd is slechts gedeeltelijk gestoord. TIJDSCHR KINDERGENEESKD 2003;71 (3):102-109
Groothoff JW, Grootenhuis MA, Offringa M, Gruppen MP, Korevaar JC, Heymans HSA, Quality of life in adults with end-stage renal disease since childhood is only partially impaired. NEPHROL DIAL TRANSPL 2003;18 (2):310-317 [PubMed]
Houtzager BA, Grootenhuis MA, Hoekstra-Weebers JEHM, Caron HN, Last BF, Psychosocial functioning in siblings of paediatric cancer patients one to six months after diagnosis. EUR J CANCER 2003;39 (10):1423-1432 [PubMed]
Houtzager BA, Grootenhuis MA, Hoekstra-Weebers JEHM, Last BF, Kwaliteit van leven en coping bij broers en zussen van kinderen met kanker. TIJDSCHR KINDERGENEESKD 2003;71 (3):123-133
Krol Y, Grootenhuis MA, Destree-Vonk A, Lubbers LJ, Koopman HM, Last BF, Health related quality of life in children with congenital heart disease. PSYCHOL HEALTH 2003;18 (2):251-260
Langeveld NE. Cured of cancer. From childhood to adulthood quality of survival. S.l.: s.n.; 2003. 215p. ISBN 90 5170 709 6 [UvA Dissertations Online] Proefschrift Universiteit van Amsterdam. (Promotor(s): Voûte PA; copromotor(s): de Haan RJ, Grootenhuis MA)
Langeveld NE, Grootenhuis MA, Voûte PA, de Haan RJ, van den Bos C, No excess fatigue in young adult survivors of childhood cancer. EUR J CANCER 2003;39 (2):204-214 [PubMed]
Langeveld NE, Ubbink MC, Last BF, Grootenhuis MA, Voûte PA, de Haan RJ, Educational achievement, employment and living situation in long-term young adult survivors of childhood cancer in the Netherlands. PSYCHO-ONCOLOGY 2003;12 (3):213-225 [PubMed]
van der Zaag-Loonen HJ, Derkx HHF, Grootenhuis MA, Last BF, Hoe meet je de kwaliteit van leven van kinderen met een chronische ziekte?. TIJDSCHR KINDERGENEESKD 2003;71 (3):119-ev.
Grootenhuis MA, Stam H, Last BF, Destree-Vonk A. LVJV: levensloop vragenlijst voor jong-volwassenen. Handleiding. S.l.: s.n.; 2002. -p.
Groothoff JW, Grootenhuis M, Dommerholt A, Gruppen MP, Offringa M, Heymans HSA, Impaired cognition and schooling in adults with end stage renal disease since childhood. ARCH DIS CHILD 2002;87 (5):380-385 [PubMed]
Langeveld NE, Stam H, Grootenhuis MA, Last BF, Quality of life in young adult survivors of childhood cancer. SUPPORT CARE CANCER 2002;10 (8):579-600 [PubMed]
Loonen HJ, Grootenhuis MA, Last BF, de Haan RJ, Bouquet J, Derkx BHF, Measuring quality of life in children with inflammatory bowel disease: The Impact-II (NL). QUAL LIFE RES 2002;11 (1):47-56 [PubMed]
Loonen HJ, Grootenhuis MA, Last BF, Koopman HM, Derkx HHF, Quality of life in paediatric inflammatory bowel disease measured by a generic and a disease-specific questionnaire. ACTA PAEDIATR 2002;91 (3):348-354 [PubMed]
van Dijk M, Grootenhuis MA, de Boer M, Bermond B, Last BF, Alexithymia in long-term survivors of childhood cancer. PEDIATR REHABIL 2002;5 (4):203-207 [PubMed]
Grootenhuis MA, Last BF, Children with cancer with different survival perspectives: defensiveness, control strategies, and psychological adjustment. PSYCHO-ONCOLOGY 2001;10 (4):305-314 [PubMed]
Houtzager BA, Grootenhuis MA, Last BF, Supportive groups for siblings of pediatric oncology patients: impact on anxiety. PSYCHO-ONCOLOGY 2001;10 (4):315-324 [PubMed]
Stam H, Grootenhuis MA, Last BF, Social and emotional adjustment in young survivors of childhood cancer. SUPPORT CARE CANCER 2001;9 (7):489-513 [PubMed]
Houtzager BA, Grootenhuis MA, Last BF, Adjustment of siblings to childhood cancer: a literature review. SUPPORT CARE CANCER 1999;7 (5):302-320 [PubMed]
Grootenhuis MA, Last BF, de Graaf-Nijkerk JH, van der Wel M, Use of alternative treatment in pediatric oncology. CANCER NURS 1998;21 (4):282-288 [PubMed]
Grootenhuis MA, Last BF, van der Wel M, de Graaf-Nijkerk JH, Parents' attribution of positive characteristics to their children with cancer. PSYCHOL HEALTH 1998;13 (1):67-81
Last BF, Grootenhuis MA, Emotions, coping and the need for support in families of children with cancer: a model for psychosocial care. PATIENT EDUC COUNS 1998;33 (2):169-179 [PubMed]
Grootenhuis MA, Last BF, Adjustment and coping by parents of children with cancer: a review of the literature. SUPPORT CARE CANCER 1997;5 (6):466-484 [PubMed]
Grootenhuis MA, Last BF, Parents' emotional reactions related to different prospects for the survival of their children with cancer. J PSYCHOSOC ONCOL 1997;15 (1):43-62
Grootenhuis MA, Last BF, Predictors of parental emotional adjustment to childhood cancer. PSYCHO-ONCOLOGY 1997;6 (2):115-128 [PubMed]
Grootenhuis MA, Last BF, de Graaf-Nijkerk JH, van der Wel M, Secondary control strategies used by parents of children with cancer. PSYCHO-ONCOLOGY 1996;5 (2):91-102
Grootenhuis MA, van der Wel M, de Graaf-Nijkerk J, Last BF, Exploration of a self-protective strategy in pediatric oncology staff. MED PEDIATR ONCOL 1996;27 (1):40-47 [PubMed]
Grootenhuis M, Hawton K, van Rooijen L, Fagg J, ATTEMPTED-SUICIDE IN OXFORD AND UTRECHT. BRIT J PSYCHIAT 1994;165 (1):73-78 [PubMed]
Key publications

Haverman L , van Rossum MAJ, van Veenendaal M, van den Berg JM, Dolman KM, Swart J, Kuijpers TW, Grootenhuis MA, Effectiveness of a web-based application to monitor health-related quality of life. PEDIATRICS 2013;131 (2):e533-e543 [PubMed]
Scholten L , Willemen AM, Last BF, Maurice-Stam H, van Dijk EM, Ensink E, Zandbelt N, van der Hoop-Mooij A, Schuengel C, Grootenhuis MA, Efficacy of Psychosocial Group Intervention for Children With Chronic Illness and Their Parents. PEDIATRICS 2013;131 (4):E1196-E1203 [PubMed]
de Ruiter MA, Oosterlaan J, Schouten-van Meeteren AYN, Maurice-Stam H, van Vuurden DG, Gidding C, Beek LR, Granzen B, Caron HN, Grootenhuis MA, Neurofeedback ineffective in paediatric brain tumour survivors: Results of a double-blind randomised placebo-controlled trial. EUR J CANCER 2016;64:62-73 [PubMed]
Haverman L , van Oers HA, Limperg PF, Houtzager BA , Huisman J, Darlington AS, Maurice-Stam H, Grootenhuis MA, Development and validation of the distress thermometer for parents of a chronically ill child. J PEDIATR-US 2013;163 (4):1140-6.e2 [PubMed]
van Oers HA, Haverman L, Limperg PF, van Dijk-Lokkart EM, Maurice-Stam H, Grootenhuis MA, Anxiety and depression in mothers and fathers of a chronically ill child. MATERN CHILD HLTH J 2014;18 (8):1993-2002 [PubMed]


All Publications

Research programmes

Psychosocial consequences of chronic and life-threatening illness during childhood

The research focuses on the psychosocial effects of chronic illness – including childhood cancer – during the childhood years. There is still a lack of knowledge on the psychosocial functioning of children, adolescents and young adults growing up with a chronic illness. To develop and implement tailor-made pediatric psychosocial care permanent research on the risk factors affecting individual patient systems and families is required. We are further developing questionnaires and systems in order to identify problems at an early age and stage. The research will increasingly rely on web-based applications. A case in point would be the digital KLIK (www.hetklikt.nu) method, designed to systematically track the quality of life and development of chronically ill children and integrate results in the clinical practice. We will also further develop and evaluate (online) interventions for chronically ill children to help them learn to cope with their condition more effectively. Online interventions for siblings and parents are part of this development as well (www.opkoersonline.nl). The research is all described on www.zorgvoorhetziekekind.nl


Themes: Oncology and Public Health

Faculty
Prof. dr. M.A. Grootenhuis MSc PhD
Dr. M. van Dijk
Dr. L. Haverman
Dr. H. Maurice-Stam PhD
Dr. K.J. Oostrom
Dr. L. Scholten
Dr. L. van der Sluijs Veer

Postdocs
Drs. J.P. Marchal (Yield- University of Amsterdam)

PhD Students
K.L.A. van Bindsbergen
Drs. D.A. Colenbrander
M. Douma
S. Lijdsman
Drs. E.P.M. van Meijel
M.M. van Muilekom
Drs. H. van Oers MSc
A.M.J.B. Smets MD
P. D'Olivo (TU Delft)
Drs. S. Sintnicoloaas (St Radboud Ziekenhuis Nijmegen)
Drs. L. Steur (VUMC)
Drs. L.M. Verberne (Julius Instituut UMCU)

Others
Drs. A.L. Blaauboer
Drs. M.M. Joosten
Drs. F.E. Walraven

Prof. dr. H.N. Caron MD PhD (Paediatric Oncology; biology and clinical)

Dr. J.W. Groothoff MD PhD (End-stage Renal Insufficiency in Children)

Other research related activities
  • Membership of editorial board / Editorship, TIJDSCHRIFT VOOR KINDERGENEESKUNDE
  • Contribution to guidelines and protocols, Psychosociale screening LATER (Kinderoncologie)
  • Membership of editorial board / Editorship, HEALTH PSYCHOLOGY
  • Chair Pediatric Psycho Oncology committee, SIOP (international Society of Pediatric Oncology)
  • Membership of editorial board / Editorship, SUPPORTIVE CARE IN CANCER
  • Board of directors / Trustees / Supervisory board, Ronald McDonald Huis Amsterdam
  • Contribution to guidelines and protocols, Psychsocial Standards of Care Children with Cancer
  • Membership of editorial board / Editorship, EUROPEAN JOURNAL OF CANCER
Current research funding
  • AMC
  • Fonds NUTS-OHRA
  • Stichting Loglijn
  • Stichting Roparun
  • Stichting tot Steun EKZ-AMC
  • Technologiestichting STW
  • UCCZ Dekkerswald BV
  • Zorginstituut Nederland