J.H. van der Lee MD PhD publications

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Publications MD PhD J.H. van der Lee

Position
Research Associate
Main activities
Research
Specialisation
clinical epidemiology
Focus of research
  1. Systematic Reviews
  2. Clinimetrics
  3. RCT methodology related to optimal sample sizes

2021

  • van Eyck Annelies, Eerens Sofie, Trouet Dominique, Lauwers Eline, Wouters Kristien, de Winter Benedicte Y., van der Lee Johanna H., van Hoeck Koen, Ledeganck Kristien J. Body composition monitoring in children and adolescents: reproducibility and reference values European journal of pediatrics 2021 [PubMed]
  • van Ewijk Roelof, Vaarwerk Bas, Breunis Willemijn B., Schoot Reineke A., ter Horst Simone A. J., van Rijn Rick R., van der Lee Johanna H., Merks Johannes H. M. The value of early tumor size response to chemotherapy in pediatric rhabdomyosarcoma Cancers 2021;13 (3):1-15

2020

  • van Ham Kirsten, Hoytema van Konijnenburg Eva M. M., Brilleslijper-Kater Sonja N., Schepers Amber, Daams Joost G., Teeuw Arianne H., van Rijn Rick R., van der Lee Johanna H. A Systematic Review of Instruments used to Assess Nonverbal Emotional Signs in Children during an Investigative Interview for Suspected Sexual Abuse Child abuse review 2020;29 (1):12-26
  • Lubout C M A, Blanco F Arrieta, Bartosiewicz K, Feillet F, Gizewska M, Hollak C, van der Lee J H, Maillot F, Stepien K M, Wagenmakers M A E M, Welsink-Karssies M M, van Spronsen F J, Bosch A M Bone mineral density is within normal range in most adult phenylketonuria patients Journal of inherited metabolic disease 2020;43 (2):251-258 [PubMed]
  • Welsink-Karssies Mendy M., Ferdinandusse Sacha, Geurtsen Gert J., Hollak Carolina E. M., Huidekoper Hidde H., Janssen Mirian C. H., Langendonk Janneke G., van der Lee Hanneke H., O'Flaherty Roisin, Oostrom Kim J., Roosendaal Stefan D., Rubio-Gozalbo M. Estela, Saldova Radka, Treacy Eileen P., Vaz Fred M., de Vries Maaike C., Engelen Marc, Bosch Antonette M. Deep phenotyping classical galactosemia: clinical outcomes and biochemical markers Brain Communications 2020;2 (1) [PubMed]
  • van Veenendaal Nicole R., van Kempen Anne A. M. W., Franck Linda S., O'Brien Karel, Limpens Jacqueline, van der Lee Johanna H., van Goudoever Johannes B., van der Schoor Sophie R. D. Hospitalising preterm infants in single family rooms versus open bay units: A systematic review and meta-analysis of impact on parents EClinicalMedicine 2020;23 [PubMed]
  • Vermeulen Eric, Karsenberg Kim, van der Lee Johanna H., de Wildt Saskia N. Involve Children and Parents in Clinical Studies CTS-CLINICAL AND TRANSLATIONAL SCIENCE 2020;13 (1):11-13 [PubMed]
  • Vaarwerk Bas, Mallebranche Coralie, Affinita Maria C., van der Lee Johanna H., Ferrari Andrea, Chisholm Julia C., Defachelles Anne-Sophie, de Salvo Gian Luca, Corradini Nadège, Minard-Colin Veronique, Morosi Carlo, Brisse Hervé J., McHugh Kieran, Bisogno Gianni, van Rijn Rick R., Orbach Daniel, Merks Johannes H. M. Is surveillance imaging in pediatric patients treated for localized rhabdomyosarcoma useful? The European experience Cancer 2020;126 (4):823-831 [PubMed]
  • van Kempen Anne A. M. W., Eskes P. Frank, Nuytemans Debbie H. G. M., van der Lee Johanna H., Dijksman Lea M., van Veenendaal Nicole R., van der Hulst Flip J. P. C. M., Moonen Rob M. J., Zimmermann Luc J. I., van 't Verlaat Ellen P., van Dongen-van Baal Minouche, Semmekrot Ben A., Stas H. lène G., van Beek Ron H. T., Vlietman José J., Dijk Peter H., Termote Jacqueline U. M., de Jonge Rogier C. J., de Mol Amerik C., Huysman Marianne W. A., Kok Joke H., Offringa Martin, Boluyt Nicole Lower versus Traditional Treatment Threshold for Neonatal Hypoglycemia New England journal of medicine 2020;382 (6):534-544 [PubMed]
  • Knaapen Max, Ploem Martine Corrette, Kruijt Maya, Oudijk Martijn A., van der Graaf Rieke, Bet Pierre M., Bakx Roel, van Heurn L. W. Ernst, Gorter Ramon R., van der Lee Johanna H. Low-risk trials for children and pregnant women threatened by unnecessary strict regulations. Does the coming EU Clinical Trial Regulation offer a solution? European journal of pediatrics 2020;179 (8):1205-1211 [PubMed]
  • van Amstel Paul, Sluckin Tania C., van Amstel Tim, van der Lee Johanna H., de Vries Ralph, Derikx Joep P. M., Bakx Roel, van Heurn L. W. Ernest, Gorter Ramon R. Management of appendiceal mass and abscess in children; early appendectomy or initial non-operative treatment? A systematic review and meta-analysis Surgical endoscopy 2020;34 (12):5234-5249 [PubMed]
  • van den Hof Malon, Wit Ferdinand W. N. M., Reiss Peter, ter Haar Anne M., Scherpbier Henriette J., van der Lee Hanneke H., Oostrom Kim J., Pajkrt Dasja Neurocognitive Development in Perinatally Human Immunodeficiency Virus-infected Adolescents on Long-term Treatment, Compared to Healthy Matched Controls: A Longitudinal Study Clinical infectious diseases 2020;70 (7):1364-1371
  • van Wassenaer Elsa A., van Oosterhout Janneke P. M., Daams Joost G., van den Berg Merlijn J. M., van der Lee Hanneke, D'Haens Geert R., de Meij Tim G. J., Benninga Marc A., Koot Bart G. P. Safety of Rapid Infliximab Infusions in Children: A Systematic Review Journal of pediatric gastroenterology and nutrition 2020;71 (3):361-365 [PubMed]
  • van der Lee Johanna H., Morton Jonathan, Adams Heather R., Clarke Lorne, Eisengart Julie B., Escolar Maria L., Giugliani Roberto, Harmatz Paul, Hogan Melissa, Kearney Shauna, Muenzer Joseph, Muschol Nicole, Rust Stewart, Saville Benjamin R., Semrud-Clikeman Margaret, Wang Raymond, Shapiro Elsa Therapy development for the mucopolysaccharidoses: Updated consensus recommendations for neuropsychological endpoints Molecular genetics and metabolism 2020;131 (1-2):181-196 [PubMed]
  • van Ham Kirsten, Brilleslijper-Kater Sonja, van der Lee Hanneke, van Rijn Rick, van Goudoever Hans, Teeuw Rian Validation of the Sexual Knowledge Picture Instrument as a diagnostic instrument for child sexual abuse: Study protocol BMJ Paediatrics Open 2020;4 (1) [PubMed]

2019

  • van Wassenaer Elsa A., de Voogd Floris A. E., van Rijn Rick R., van der Lee Johanna H., Tabbers Merit M., van Etten-Jamaludin Faridi S., Kindermann Angelika, de Meij Tim G. J., Gecse K. B., D’Haens Geert R., Benninga Marc A., Koot Bart G. P. Bowel ultrasound measurements in healthy children — systematic review and meta-analysis Pediatric radiology 2019 [PubMed]
  • van den Hof Malon, ter Haar Anne Marleen, Caan Matthan W. A., Spijker Rene, van der Lee Johanna H., Pajkrt Dasja Brain structure of perinatally HIV-infected patients on long-term treatment: A systematic review Neurology. Clinical practice 2019;9 (5):433-442 [PubMed]
  • Simons Noor E., van de Beek Cornelieke, van der Lee Johanna H., Opmeer Brent C., van Wassenaer-Leemhuis Aleid G., van Baar Anneloes L., Steenis Leonie, Liem Sophie, Schuit Ewoud, Bekedam Dick, Mol Ben W. J., van‘t Hooft Janneke Child outcomes after placement of a cervical pessary in women with a multiple pregnancy: A 4-year follow-up of the ProTWIN trial Acta obstetricia et gynecologica Scandinavica 2019 [PubMed]
  • Knaapen Max, van der Lee Johanna H., Heij Hugo A., van Heurn Ernst L. W., Bakx Roel, Gorter Ramon R. Clinical recovery in children with uncomplicated appendicitis undergoing non-operative treatment: secondary analysis of a prospective cohort study European journal of pediatrics 2019;178 (2):235-242 [PubMed]
  • van Wassenaer Elsa A., de Voogd Floris A. E., van Rijn Rick R., van der Lee Johanna H., Tabbers Merit M., van Etten-Jamaludin Faridi S., Gecse Krisztina B., Kindermann Angelika, de Meij Tim G. J., D'haens Geert R., Benninga Marc A., Koot Bart G. P. Diagnostic Accuracy of Transabdominal Ultrasound in Detecting Intestinal Inflammation in Paediatric IBD Patients-a Systematic Review Journal of Crohn s & colitis 2019;13 (12):1501-1509 [PubMed]
  • Knaapen Max, Hall Nigel J., van der Lee Johanna H., Butcher Nancy J., Offringa Martin, van Heurn Ernst W. E., Bakx Roel, Gorter Ramon R. Establishing a core outcome set for treatment of uncomplicated appendicitis in children: Study protocol for an international Delphi survey BMJ open 2019;9 (5) [PubMed]
  • Gaasterland C. M. W., van der Weide M. C. Jansen, Roes K. C. B., van der Lee J. H. Goal attainment scaling as an outcome measure in rare disease trials: a conceptual proposal for validation BMC medical research methodology 2019;19 (1):227 [PubMed]
  • van Veenendaal Nicole R., Heideman Wieke H., Limpens Jacqueline, van der Lee Johanna H., van Goudoever Johannes B., van Kempen Anne A. M. W., van der Schoor Sophie R. D. Hospitalising preterm infants in single family rooms versus open bay units: a systematic review and meta-analysis The Lancet Child and Adolescent Health 2019;3 (3):147-157
  • Kuiper Gé-Ann, Nijmeijer Stephanie C. M., Roelofs Manouck J. M., van der Lee Johanneke H., Hollak Carla E. M., Bosch Annet M. Limited data to evaluate real-world effectiveness of enzyme replacement therapy for mucopolysaccharidosis type I Journal of inherited metabolic disease 2019;42 (5):762-775 [PubMed]
  • The Sarah-May M. L., Bakx Roel, Budding Andries E., de Meij Tim G. J., van der Lee Johanna H., Bunders Madeleine J., Poort Linda, Heij Hugo A., van Heurn L. W. Ernst, Gorter Ramon R. Microbiota of Children With Complex Appendicitis: Different Composition and Diversity of The Microbiota in Children With Complex Compared With Simple Appendicitis Pediatric infectious disease journal 2019;38 (10):1054-1060 [PubMed]
  • Van den Hof Malon, Ter Haar Anne Marleen, Scherpbier Henriette J, van der Lee Johanna H, Reiss Peter, Wit Ferdinand W N M, Oostrom Kim J, Pajkrt Dasja Neurocognitive development in perinatally HIV-infected adolescents on long-term treatment compared to healthy matched controls: a longitudinal study Clinical infectious diseases 2019 [PubMed]
  • Gaasterland Charlotte M. W. Patient involvement in rare disease trial design: Small populations making a big difference 2019. 263p. ISBN 9789463804530. [UvA Dissertations Online] University of Amsterdam. (Supervisors: van Goudoever H. B. , Roes K. C. B.; Co-supervisors: van der Lee J. H. , Jansen-van der Weide M. C.)
  • Favié Laurent M. A., Groenendaal Floris, van den Broek Marcel P. H., Rademaker Carin M. A., de Haan Timo R., van Straaten Henrica L. M., Dijk Peter H., van Heijst Arno, Dudink Jeroen, Dijkman Koen P., Rijken Monique, Zonnenberg Inge A., Cools Filip, Zecic Alexandra, van der Lee Johanna H., Nuytemans Debbie H. G. M., van Bel Frank, Egberts Toine C. G., Huitema Alwin D. R. Pharmacokinetics of morphine in encephalopathic neonates treated with therapeutic hypothermia PLoS ONE 2019;14 (2) [PubMed]
  • Favié Laurent M. A., Groenendaal Floris, van den Broek Marcel P. H., Rademaker Carin M. A., de Haan Timo R., van Straaten Henrica L. M., Dijk Peter H., van Heijst Arno, Simons Sinno H. P., Dijkman Koen P., Rijken Monique, Zonnenberg Inge A., Cools Filip, Zecic Alexandra, van der Lee Johanna H., Nuytemans Debbie H. G. M., van Bel Frank, Egberts Toine C. G., Huitema Alwin D. R. Phenobarbital, midazolam pharmacokinetics, effectiveness, and drug-drug interaction in asphyxiated neonates undergoing therapeutic hypothermia Neonatology 2019;116 (2):154-162 [PubMed]
  • van Amstel Paul, Gorter Ramon R., van der Lee Johanna H., Cense Huib A., Bakx Roel, Heij Hugo A. Ruling out Appendicitis in Children: Can We Use Clinical Prediction Rules? Journal of gastrointestinal surgery 2019;23 (10):2027-2048 [PubMed]
  • Urach S., Gaasterland C. M. W., Posch M., Jilma B., Roes K., Rosenkranz G., van der Lee J. H., Ristl R. Statistical analysis of Goal Attainment Scaling endpoints in randomised trials Statistical methods in medical research 2019;28 (6):1893-1910 [PubMed]
  • Gaasterland C. M. W., van der Weide M. C. Jansen -, du Prie-Olthof M. J., Donk M., Kaatee M. M., Kaczmarek R., Lavery C., Leeson-Beevers K., O'Neill N., Timmis O., van Nederveen V., Vroom E., van der Lee J. H. The patient's view on rare disease trial design - A qualitative study Orphanet journal of rare diseases 2019;14 (1) [PubMed]
  • Kuiper G. -Ann, Langereis Eveline J., Breyer Sandra, Carbone Marco, Castelein René M., Eastwood Deborah M., Garin Christophe, Guffon Nathalie, van Hasselt Peter M., Hensman Pauline, Jones Simon A., Kenis Vladimir, Kruyt Moyo, van der Lee Johanna H., Mackenzie William G., Orchard Paul J., Oxborrow Neil, Parini Rossella, Robinson Amy, Schubert Hjalmarsson Elke, White Klane K., Wijburg Frits A. Treatment of thoracolumbar kyphosis in patients with mucopolysaccharidosis type I: results of an international consensus procedure Orphanet journal of rare diseases 2019;14 (1):17 [PubMed]

2018

  • Mitroiu Marian, Rengerink Katrien Oude, Pontes Caridad, Sancho Aranzazu, Vives Roser, Pesiou Stella, Fontanet Juan Manuel, Torres Ferran, Nikolakopoulos Stavros, Pateras Konstantinos, Rosenkranz Gerd, Posch Martin, Urach Susanne, Ristl Robin, Koch Armin, Loukia Spineli, van der Lee Johanna H., Roes Kit C. B. Applicability and added value of novel methods to improve drug development in rare diseases Orphanet journal of rare diseases 2018;13 (1):200 [PubMed]
  • de Haan T. R., Langeslag J., van der Lee J. H., van Kaam A. H. A systematic review comparing neurodevelopmental outcome in term infants with hypoxic and vascular brain injury with and without seizures BMC pediatrics 2018;18 (1) [PubMed]
  • Vandermeer Ben, van der Tweel Ingeborg, Jansen-van der Weide Marijke C., Weinreich Stephanie S., Contopoulos-Ioannidis Despina G., Bassler Dirk, Fernandes Ricardo M., Askie Lisa, Saloojee Haroon, Baiardi Paola, Ellenberg Susan S., van der Lee Johanna H. Comparison of nuisance parameters in pediatric versus adult randomized trials: a meta-epidemiologic empirical evaluation BMC medical research methodology 2018;18 (1):7 [PubMed]
  • Bijleveld Yuma A., de Haan Timo R., van der Lee Johanna H., Groenendaal Floris, Dijk Peter H., van Heijst Arno, de Jonge Rogier C. J., Dijkman Koen P., van Straaten Henrica L. M., Rijken Monique, Zonnenberg Inge A., Cools Filip, Zecic Alexandra, Nuytemans Debbie H. G. M., van Kaam Anton H., Mathôt Ron A. A. Evaluation of a System-specific Function to Describe the Pharmacokinetics of Benzylpenicillin in Term Neonates Undergoing Moderate Hypothermia Antimicrobial agents and chemotherapy 2018;62 (4):e02311-17 [PubMed]
  • Hoytema van Konijnenburg Eva M. M., Gigengack Maj, Teeuw Arianne H., Sieswerda-Hoogendoorn Tessa, Brilleslijper-Kater Sonja N., Flapper Boudien C., Lindauer Ramón J. L., van Goudoever Johannes B., van der Lee Johanna H., Biezeveld Maarten H., Edelenbos Esther, van Sommeren Pauwlina G. W., Mahdi Ulrike, Poldervaart Jacoba D., Sanders Marian K., Schoonenberg N., Vogt Anne, Wilms Janneke F. Follow-up protocol was useful for children whose parents attended emergency departments after partner violence, substance abuse or a suicide attempt Acta paediatrica (Oslo, Norway 2018;107 (1):110-120 [PubMed]
  • Stokhuijzen Eva, Rand Margaret L., Cnossen Marjon H., Biss Tina T., James Paula D., Suijker Monique H., Peters Marjolein, van der Lee Johanna H., Peters Bram, Meijer Alexander B., Blanchette Victor S., Fijnvandraat Karin Identifying Children with HEreditary Coagulation disorders (iCHEC): A protocol for a prospective cohort study BMJ open 2018;8 (5) [PubMed]
  • Gorter Ramon R., van der Lee Johanna H., Heijsters Florence A. C. J., Cense Huibert A., Bakx Roel, Kneepkens C. M. Frank, Wijnen Marc H., van der Steeg Alida F. W., In't Hof Klaas H., Offringa Martin, Heij Hugo A. Outcome of initially nonoperative treatment for acute simple appendicitis in children Journal of pediatric surgery 2018;53 (9):1849-1854 [PubMed]
  • van 't Hooft Janneke, van der Lee Johanna H., Opmeer Brent C., van Wassenaer-Leemhuis Aleid G., van Baar Anneloes L., Bekedam Dick J., Steenis Leonie J. P., Liem Sophie, Schuit Ewoud, Cuijpers Cuny, Bleeker Elise, Vinke Margot E., Simons Noor, de Graaf Irene M., Mol Ben Willem J., van de Beek Cornelieke Pessary for preterm birth prevention in twin pregnancy with short cervix: 3-year follow-up study Ultrasound in obstetrics & gynecology 2018;51 (5):621-628 [PubMed]
  • Bijleveld Y. A., Mathôt Raa, van der Lee J. H., Groenendaal F., Dijk P. H., van Heijst A., Simons Shp, Dijkman K. P., van Straaten Hlm, Rijken M., Zonnenberg I. A., Cools F., Zecic A., Nuytemans Dhgm, van Kaam A. H., de Haan T. R. Population Pharmacokinetics of Amoxicillin in Term Neonates Undergoing Moderate Hypothermia Clinical pharmacology and therapeutics 2018;103 (3):458-467 [PubMed]
  • Vaarwerk Bas, van der Lee Johanna H., Breunis Willemijn B., Orbach Daniel, Chisholm Julia C., Cozic Nathalie, Jenney Meriel, van Rijn Rick R., McHugh Kieran, Gallego Soledad, Glosli Heidi, Devalck Christine, Gaze Mark N., Kelsey Anna, Bergeron Christophe, Stevens Michael C. G., Oberlin Odile, Minard-Colin Veronique, Merks Johannes H. M. Prognostic relevance of early radiologic response to induction chemotherapy in pediatric rhabdomyosarcoma: A report from the International Society of Pediatric Oncology Malignant Mesenchymal Tumor 95 study Cancer 2018;124 (5):1016-1024 [PubMed]
  • Jansen-van der Weide Marijke C., Gaasterland Charlotte M. W., Roes Kit C. B., Pontes Caridad, Vives Roser, Sancho Arantxa, Nikolakopoulos Stavros, Vermeulen Eric, van der Lee Johanna H. Rare disease registries: Potential applications towards impact on development of new drug treatments Orphanet journal of rare diseases 2018;13 (1) [PubMed]
  • Demirdas Serwet, van Spronsen Francjan J., Hollak Carla E. M., van der Lee J. Hanneke, Bisschop Peter H., Vaz Fred M., ter Horst Nienke M., Rubio-Gozalbo M. Estela, Bosch Annet M. Response to the Letter to the Editor Regarding "Micronutrients, Essential Fatty Acids and Bone Health in Phenylketonuria" Annals of nutrition & metabolism 2018;72 (1):80-81 [PubMed]
  • Gaasterland C. M. W., Jansen-van der Weide M. C., Vroom E., Leeson-Beevers K., Kaatee M., Kaczmarek R., Bartels B., van der Pol W. L., Roes K. C. B., van der Lee J. H. The POWER-tool: Recommendations for involving patient representatives in choosing relevant outcome measures during rare disease clinical trial design Health policy (Amsterdam, Netherlands) 2018;122 (12):1287-1294 [PubMed]

2017

  • Gorter Ramon R. Appendicitis in children: new insights into an old problem 2017. [UvA Dissertations Online] Free University, Amsterdam: Medicine. (Supervisors: Heij H. A., van Heurn L. W.E.; Co-supervisors: van der Lee J. H., Bakx R.)
  • van der Lee Johanna H., Morton Jonathan, Adams Heather R., Clarke Lorne, Ebbink Berendine Johanne, Escolar Maria L., Giugliani Roberto, Harmatz Paul, Hogan Melissa, Jones Simon, Kearney Shauna, Muenzer Joseph, Rust Stewart, Semrud-Clikeman Margaret, Wijburg Frits A., Yu Zi-Fan, Janzen Darren, Shapiro Elsa Cognitive endpoints for therapy development for neuronopathic mucopolysaccharidoses: Results of a consensus procedure Molecular genetics and metabolism 2017;121 (2):70-79 [PubMed]
  • Dobrowolski Linn C., van Huis Maike, van der Lee Johanna H., Peters Sengers Hessel, Liliën Marc R., Cransberg Karlien, Cornelissen Marlies, Bouts Antonia H., de Fijter Johan W., Berger Stefan P., van Zuilen Arjan, Nurmohamed Shaikh A., Betjes Michiel H. G., Hilbrands Luuk, Hoitsma Andries J., Bemelman Frederike J., Paul Krediet C. T., Groothoff Jaap W. Epidemiology and management of hypertension in paediatric and young adult kidney transplant recipients in The Netherlands : Erratum Nephrology, dialysis, transplantation 2017;32 (2):402 [PubMed]
  • Vermeulen Eric, van den Anker John N., Della Pasqua Oscar, Hoppu Kalle, van der Lee Johanna H. How to optimise drug study design: pharmacokinetics and pharmacodynamics studies introduced to paediatricians Journal of pharmacy and pharmacology 2017;69 (4):439-447 [PubMed]
  • Knaapen Max, van der Lee Johanna H., Bakx Roel, The Sarah-May L., van Heurn Ernst W. E., Heij Hugo A., Gorter Ramon R., Rippen H., Bet P. M., Kazemier G., Kneepkens C. M. F., Wijnen R., Offringa M., Ahmadi N., Bonjer H. J., van Rijn R. R., Benninga M. A., Bemelman W. A., Hilarius D. L., van Veen S. A. J. M., Go P. M. N. Y. H., Cense H. A., de Vries A., Straatman J., in ’t Hof K. H., van Beek E. J. A. H., Bender M. H. M., van den Hill L. C. L., Bolhuis H. W., Treskes K., Bijlsma T. S., Geubbels N., de Blaauw I., Botden S. M. B. I., Leijdekkers V. J., Boonstra M. C., Rongen L. H., Boerma E. J. G., Luyer M. D. P., Vugts G., Copper T., Garssen F. P., Hulsker C., Visschers R. G. J. Initial non-operative management of uncomplicated appendicitis in children: a protocol for a multicentre randomised controlled trial (APAC trial) BMJ open 2017;7 (11):e018145 [PubMed]
  • Welling Lindsey, Bernstein Laurie E., Berry Gerard T., Burlina Alberto B., Eyskens François, Gautschi Matthias, Grünewald Stephanie, Gubbels Cynthia S., Knerr Ina, Labrune Philippe, van der Lee Johanna H., MacDonald Anita, Murphy Elaine, Portnoi Pat A., Õunap Katrin, Potter Nancy L., Rubio-Gozalbo M. Estela, Spencer Jessica B., Timmers Inge, Treacy Eileen P., van Calcar Sandra C., Waisbren Susan E., Bosch Annet M. International clinical guideline for the management of classical galactosemia: diagnosis, treatment, and follow-up Journal of inherited metabolic disease 2017;40 (2):171-176 [PubMed]
  • Demirdas Serwet, van Spronsen Francjan J., Hollak Carla E. M., van der Lee J. Hanneke, Bisschop Peter H., Vaz Fred M., ter Horst Nienke M., Rubio-Gozalbo M. Estela, Bosch Annet M. Micronutrients, Essential Fatty Acids and Bone Health in Phenylketonuria Annals of nutrition & metabolism 2017;70 (2):111-121 [PubMed]
  • Hoytema van Konijnenburg E. M. M., van der Lee J. H., Teeuw A. H., Lindeboom R., Brilleslijper-Kater S. N., Sieswerda-Hoogendoorn T., van Goudoever J. B., Lindauer R. J. L. Psychosocial problems of children whose parents visit the emergency department due to intimate partner violence, substance abuse or a suicide attempt Child: care, health and development 2017;43 (3):369-384 [PubMed]
  • Welling Lindsey, Waisbren Susan E., Antshel Kevin M., Colhoun Hugh-Owen, Gautschi Matthias, Grünewald Stephanie, Holman Rebecca, van der Lee Johanna H., Treacy Eileen P., Bosch Annet M. Systematic Review and Meta-analysis of Intelligence Quotient in Early-Treated Individuals with Classical Galactosemia JIMD reports 2017;37:115-123 [PubMed]
  • Gorter Ramon R., The Sarah-May M. L., Gorter-Stam Marguerite A. W., Eker Hasan H., Bakx Roel, van der Lee Johanna H., Heij Hugo A. Systematic review of nonoperative versus operative treatment of uncomplicated appendicitis Journal of pediatric surgery 2017;52 (8):1219-1227 [PubMed]
  • Gorter Ramon R., van Amstel Paul, van der Lee Johanna H., van der Voorn Patick, Bakx Roel, Heij Hugo A. Unexpected findings after surgery for suspected appendicitis rarely change treatment in pediatric patients; Results from a cohort study Journal of pediatric surgery 2017;52 (8):1269-1272 [PubMed]

2016

  • Gorter Ramon R., van den Boom Anne Loes, Heij Hugo A., Kneepkens C. M. Frank, Hulsker Caroline C., Tenhagen Mark, Dawson Imro, van der Lee Johanna H. A scoring system to predict the severity of appendicitis in children Journal of surgical research 2016;200 (2):452-459 [PubMed]
  • Gaasterland Charlotte M. W., Jansen-van der Weide Marijke C., Weinreich Stephanie S., van der Lee Johanna H. A systematic review to investigate the measurement properties of goal attainment scaling, towards use in drug trials BMC medical research methodology 2016;16:99 [PubMed]
  • Hoytema van Konijnenburg Eva M. M., Diderich Hester M., Teeuw Arianne H., Klein Velderman Mariska, Oudesluys-Murphy Anne Marie, van der Lee Johanna H., Biezeveld Maarten H., Brilleslijper-Kater Sonja N., Edelenbos Esther, Flapper Boudien C., van Goudoever Johannes B., Lindauer Ramón J. L., Mahdi Ulrike, Poldervaart Jacoba D., Sanders Marian K., Schoonenberg N. Jolande, Sieswerda-Hoogendoorn Tessa, van Sommeren Pauwlina G. W., Vogt Anne, Wilms Janneke F., Baeten Paul, Fekkes Minne, Pannebakker Fieke D., Sorensen Peggy J. G., Verkerk Paul H. Comparing policies for children of parents attending hospital emergency departments after intimate partner violence, substance abuse or suicide attempt Child abuse & neglect 2016;53:81-94 [PubMed]
  • Dobrowolski Linn C., van Huis Maike, van der Lee Johanna H., Peters Sengers Hessel, Liliën Marc R., Cransberg Karlien, Cornelissen Marlies, Bouts Antonia H., de Fijter Johan W., Berger Stefan P., van Zuilen Arjan, Nurmohamed Shaikh A., Betjes Michiel H. G., Hilbrands Luuk, Hoitsma Andries J., Bemelman Frederike J., Krediet Paul, Groothoff Jaap W. Epidemiology and management of hypertension in paediatric and young adult kidney transplant recipients in The Netherlands Nephrology, dialysis, transplantation 2016;31 (11):1947-1956 [PubMed]
  • van Huis Maike, Schoenmaker Nikki J., Groothoff Jaap W., van der Lee Johanna H., van Dyk Maria, Gewillig Marc, Koster Linda, Tanke Ronald, Lilien Marc, Blom Nico A., Mertens Luc, Kuipers Irene M. Impaired longitudinal deformation measured by speckle-tracking echocardiography in children with end-stage renal disease Pediatric nephrology (Berlin, Germany) 2016;31 (9):1499-1508 [PubMed]
  • van 't Hooft Janneke Improving evaluation of obstetric interventions 2016. 235p. ISBN 9789463320788. [UvA Dissertations Online] University of Amsterdam. (Supervisor: Mol B. W. J.; Co-supervisors: Opmeer B. C., van der Lee J. H.)
  • Gorter Ramon R., Meiring Suzanne, van der Lee Johanna H., Heij Hugo A. Intervention not always necessary in post-appendectomy abscesses in children; clinical experience in a tertiary surgical centre and an overview of the literature European journal of pediatrics 2016;175 (9):1185-1191 [PubMed]
  • van Huis Maike Quality of care and monitoring in paediatric end stage renal disease 2016. 177p. [UvA Dissertations Online] University of Amsterdam. (Supervisor: van Goudoever J. B.; Co-supervisors: Groothoff J. W., van der Lee J. H.)

2015

  • Hoytema van Konijnenburg Eva Margreta Marianne Child maltreatment, parents & the emergency department 2015. 273p. [UvA Dissertations Online] University of Amsterdam. (Supervisor: van Goudoever J. B.; Co-supervisors: van der Lee J. H., Lindauer R. J. L., Brilleslijper-Kater S. N.)
  • Jansen-van der Weide Marijke C., Caldwell Patrina H. Y., Young Bridget, de Vries Martine C., Willems Dick L., van't Hoff William, Woolfall Kerry, van der Lee Johanna H., Offringa Martin Clinical Trial Decisions in Difficult Circumstances: Parental Consent Under Time Pressure Pediatrics 2015;136 (4):e983-e992 [PubMed]
  • Gorter Ramon R., van der Lee Johanna H., Cense Huibert A., Kneepkens C. M. Frank, Wijnen Marc H. W. A., in 't Hof Klaas H., Offringa Martin, Heij Hugo A., Ahmadi N., Bonjer J., Galindo F., van Rijn R., Benninga M. A., Hilarius D., van Veen S., Go P. M. N. Y. H., Acherman Y. Initial antibiotic treatment for acute simple appendicitis in children is safe: Short-term results from a multicenter, prospective cohort study Surgery 2015;157 (5):916-923 [PubMed]
  • van't Hooft Janneke, van der Lee Johanna H., Opmeer Brent C., Aarnoudse-Moens Cornelieke S. H., Leenders Arnold G. E., Mol Ben Willem J., de Haan Timo R. Predicting developmental outcomes in premature infants by term equivalent MRI: systematic review and meta-analysis Systematic reviews 2015;4 (1):71 [PubMed]
  • Fernandes Ricardo M., Plint Amy C., Terwee Caroline B., Sampaio Cristina, Klassen Terry P., Offringa Martin, van der Lee Johanna H. Validity of bronchiolitis outcome measures Pediatrics 2015;135 (6):e1399-e1408 [PubMed]

2014

  • Bijleveld Yuma, de Haan Timo, Toersche Jan, Jorjani Sona, van der Lee Johanna, Groenendaal Floris, Dijk Peter, van Heijst Arno, Gavilanes Antonio W. D., de Jonge Rogier, Dijkman Koen P., van Straaten Henrica, Rijken Monique, Zonnenberg Inge, Cools Filip, Nuytemans Debbie, Mathôt Ron A simple quantitative method analysing amikacin, gentamicin, and vancomycin levels in human newborn plasma using ion-pair liquid chromatography/tandem mass spectrometry and its applicability to a clinical study Journal of chromatography. B, Analytical technologies in the biomedical and life sciences 2014;951-952:110-118 [PubMed]
  • Schoenmaker Nikki J., Haverman Lotte, Tromp Wilma F., van der Lee Johanna H., Offringa Martin, Adams Brigitte, Bouts Antonia H. M., Collard Laure, Cransberg Karlien, van Dyck Maria, Godefroid Nathalie, van Hoeck Koenraad, Koster-Kamphuis Linda, Lilien Marc R., Raes Ann, Taylan Christina, Grootenhuis Martha A., Groothoff Jaap W. Children of non-Western origin with end-stage renal disease in the Netherlands, Belgium and a part of Germany have impaired health-related quality of life compared with Western children Nephrology, dialysis, transplantation 2014;29 (2):448-457 [PubMed]
  • Schoenmaker Nikki J., Kuipers Irene M., van der Lee Johanna H., Tromp Wilma F., van Dyck Maria, Gewillig Marc, Blom Nico A., Groothoff Jaap W. Diastolic dysfunction measured by tissue Doppler imaging in children with end-stage renal disease: a report of the RICH-Q study Cardiology in the young 2014;24 (2):236-244 [PubMed]
  • Hoytema van Konijnenburg Eva M. M., van der Lee Johanna H., Brilleslijper-Kater Sonja N., van Leerdam Frank J. M., Teeuw Arianne H. Huiselijk geweld op de SEH: denk aan de kindcheck Nederlands tijdschrift voor geneeskunde 2014;158:A7120 [PubMed]
  • Zonnenberg I. A., van der Lee J. H., Kok J. H., Sauerwein H. P., van Kempen A. A. M. W. Lage insulinewaarden bij pasgeborenen rond de à terme datum Tijdschrift voor kindergeneeskunde 2014;82 (3):112-116
  • Nikolakopoulos Stavros, Roes Kit C. B., van der Lee Johanna H., van der Tweel Ingeborg Sample size calculations in pediatric clinical trials conducted in an ICU: a systematic review Trials 2014;15 (1):274 [PubMed]
  • Hoytema van Konijnenburg Eva M. M., Teeuw Arianne H., Zwaard Sophie A., van der Lee Johanna H., van Rijn Rick R. Screening methods to detect child maltreatment: high variability in Dutch emergency departments Emergency medicine journal 2014;31 (3):196-200 [PubMed]

2013

  • Gorter R. R., van der Lee J. H., Go P. M. N. Y. H., Wijnen M. H. W. A., Meijer R. W., Cense H. A., Kneepkens C. M. F., Heij H. A. Appendicitis in children: an ongoing debate Pediatric surgery international 2013;29 (7):759-760 [PubMed]
  • Bruijn M., Jansen E. M., Klapwijk T., van der Lee J. H., van Rijn R. R., van Woensel J. B. M., Bos A. P. Association between C-reactive protein levels and outcome in acute lung injury in children European journal of pediatrics 2013;172 (8):1105-1110 [PubMed]
  • Hoytema van Konijnenburg Eva M. M., Teeuw Arianne H., Sieswerda-Hoogendoorn Tessa, Leenders Arnold G. E., van der Lee Johanna H. Insufficient evidence for the use of a physical examination to detect maltreatment in children without prior suspicion: a systematic review Systematic reviews 2013;2:109 [PubMed]
  • Schoenmaker Nikki J., van der Lee Johanna H., Groothoff Jaap W., van Iperen Gabrielle G., Frohn-Mulder Ingrid M. E., Tanke Ronald B., Ottenkamp Jaap, Kuipers Irene M. Low agreement between cardiologists diagnosing left ventricular hypertrophy in children with end-stage renal disease BMC nephrology 2013;14 (1):170 [PubMed]
  • Schoenmaker Nikki J. Management & Monotoring of paediatric end-stage renal disease 2013. 181p. ISBN 9739491602146. [UvA Dissertations Online] University of Amsterdam. (Supervisor: Offringa M.; Co-supervisors: Groothoff J. W., van der Lee J. H.)
  • Beukers Fenny, van der Heide Maaike, Middelburg Karin J., Cobben Jan Maarten, Mastenbroek Sebastiaan, Breur Rinske, van der Lee Johanna H., Hadders-Algra Mijna, Bos Arend F., Kok Joke H., Houtzager Bregje A., Repping Sjoerd, Twisk Moniek, van der Veen Fulco, Haadsma Maaike, Heineman Maas Jan, van Hoften Jacorina, Jongbloed-Pereboom Marjolein, Keating Paul, Seggers Jorien Morphologic abnormalities in 2-year-old children born after in vitro fertilization/intracytoplasmic sperm injection with preimplantation genetic screening: follow-up of a randomized controlled trial Fertility and sterility 2013;99 (2):408-413 [PubMed]
  • de Haan Timo R., Beckers Loes, de Jonge Rogier C. J., Spanjaard Lodewijk, van Toledo Letty, Pajkrt Dasja, van Wassenaer-Leemhuis Aleid G., van der Lee Johanna H. Neonatal gram negative and Candida sepsis survival and neurodevelopmental outcome at the corrected age of 24 months PLoS ONE 2013;8 (3):e59214 [PubMed]
  • Hoytema van Konijnenburg Eva M. M., Sieswerda-Hoogendoorn Tessa, Brilleslijper-Kater Sonja N., van der Lee Johanna H., Teeuw Arianne H. New hospital-based policy for children whose parents present at the ER due to domestic violence, substance abuse and/or a suicide attempt European journal of pediatrics 2013;172 (2):207-214 [PubMed]
  • van Huis Maike, Schoenmaker Nikki J., Groothoff Jaap W., van der Lee Johanna H., Cransberg Karlien, Bouts Antonia H. M., Collard Laure, van Dyck Maria, Godefroid Nathalie, van Hoeck Koenraad, Taylan Christina, Koster-Kamphuis Linda, Lilien Marc R., Raes Ann, Ranguelov Nadedja Policy variation in donor and recipient status in 11 pediatric renal transplantation centers Pediatric nephrology (Berlin, Germany) 2013;28 (6):951-957 [PubMed]
  • van Laerhoven Henriette, de Haan Timo R., Offringa Martin, Post Bart, van der Lee Johanna H. Prognostic tests in term neonates with hypoxic-ischemic encephalopathy: a systematic review Pediatrics 2013;131 (1):88-98 [PubMed]
  • Schoenmaker Nikki J., Tromp Wilma F., van der Lee Johanna H., Offringa Martin, Craig Jonathan C., Groothoff Jaap W. Quality and consistency of clinical practice guidelines for the management of children on chronic dialysis Nephrology, dialysis, transplantation 2013;28 (12):3052-3061 [PubMed]
  • Langereis Eveline J., Borgo Andrea, Crushell Ellen, Harmatz Paul R., van Hasselt Peter M., Jones Simon A., Kelly Paula M., Lampe Christina, van der Lee Johanna H., Odent Thierry, Sakkers Ralph, Scarpa Maurizio, Schafroth Matthias U., Struijs Peter A., Valayannopoulos Vassili, White Klane K., Wijburg Frits A. Treatment of hip dysplasia in patients with mucopolysaccharidosis type I after hematopoietic stem cell transplantation: results of an international consensus procedure Orphanet journal of rare diseases 2013;8 (1):155 [PubMed]

2012

  • de Ru Minke H., Teunissen Quirine Ga, van der Lee Johanna H., Beck Michael, Bodamer Olaf A., Clarke Lorne A., Hollak Carla E., Lin Shuan-Pei, Rojas Maria-Verónica Muñoz, Pastores Gregory M., Raiman Julian A., Scarpa Maurizio, Treacy Eileen P., Tylki-Szymanska Anna, Wraith J. Edmond, Zeman Jiri, Wijburg Frits A. Capturing phenotypic heterogeneity in MPS I: results of an international consensus procedure Orphanet journal of rare diseases 2012;7 (1):22 [PubMed]
  • Schoenmaker Nikki J., Tromp Wilma F., van der Lee Johanna H., Adams Brigitte, Bouts Antonia H., Collard Laure, Cransberg Karlien, van Damme-Lombaerts Rita, Godefroid Nathalie, van Hoeck Koen J., Koster-Kamphuis Linda, Lilien Marc R., Raes Ann, Groothoff Jaap W. Disparities in dialysis treatment and outcomes for Dutch and Belgian children with immigrant parents Pediatric nephrology (Berlin, Germany) 2012;27 (8):1369-1379 [PubMed]
  • de Jaegere Anne P., van der Lee Johanna H., Canté Caroline, van Kaam Anton H. Early prediction of nasal continuous positive airway pressure failure in preterm infants less than 30 weeks gestation Acta paediatrica (Oslo, Norway 2012;101 (4):374-379 [PubMed]
  • Tromp Wilma F., Cransberg Karlien, van der Lee Johanna H., Bouts Antonia H., Collard Laure, van Damme-Lombaerts Rita, Godefroid Nathalie, van Hoeck Koenraad J., Koster-Kamphuis Linda, Lilien Marc R., Raes Ann, Ranguelov Nadejda, Groothoff Jaap W. Fewer pre-emptive renal transplantations and more rejections in immigrant children compared to native Dutch and Belgian children Nephrology, dialysis, transplantation 2012;27 (6):2588-2593 [PubMed]
  • Tromp Wilma F., Schoenmaker Nikki J., van der Lee Johanna H., Adams Brigitte, Bouts Antonia H. M., Collard Laure, Cransberg Karlien, van Damme-Lombaerts Rita, Godefroid Nathalie, van Hoeck Koenraad, Koster-Kamphuis Linda, Lilien Marc R., Raes Ann, Offringa Martin, Groothoff Jaap W. Important differences in management policies for children with end-stage renal disease in the Netherlands and Belgium-report from the RICH-Q study Nephrology, dialysis, transplantation 2012;27 (5):1984-1992 [PubMed]
  • van Karnebeek Clara D. M., Hartmann Hans, Jaggumantri Sravan, Bok Levinus A., Cheng Barb, Connolly Mary, Coughlin Curtis R., Das Anibh M., Gospe Sidney M., Jakobs Cornelis, van der Lee Johanna H., Mercimek-Mahmutoglu Saadet, Meyer Uta, Struys Eduard, Sinclair Graham, van Hove Johan, Collet Jean-Paul, Plecko Barbara R., Stockler Sylvia Lysine restricted diet for pyridoxine-dependent epilepsy: First evidence and future trials Molecular genetics and metabolism 2012;107 (3):335-344 [PubMed]
  • de Haan Timo R., Bijleveld Yuma A., van der Lee Johanna H., Groenendaal Floris, van den Broek Marcel P. H., Rademaker Carin M. A., van Straaten Henrica L. M., van Weissenbruch Mirjam M., Vermeulen Jeroen R., Dijk Peter H., Dudink Jeroen, Rijken Monique, van Heijst Arno, Dijkman Koen P., Gavilanes Danilo, van Kaam Anton H., Offringa Martin, Mathôt Ron A. A. Pharmacokinetics and pharmacodynamics of medication in asphyxiated newborns during controlled hypothermia. The PharmaCool multicenter study BMC pediatrics 2012;12 (1):45 [PubMed]
  • Ellenberg Susan, Fernandes Ricardo M., Saloojee Haroon, Bassler Dirk, Askie Lisa, Vandermeer Ben, Offringa Martin, van der Tweel Ingeborg, Altman Douglas G., van der Lee Johanna H. Standard 3: Data Monitoring Committees Pediatrics 2012;129 (3):S132-S137 [PubMed]
  • van der Tweel Ingeborg, Askie Lisa, Vandermeer Ben, Ellenberg Susan, Fernandes Ricardo M., Saloojee Haroon, Bassler Dirk, Altman Douglas G., Offringa Martin, van der Lee Johanna H. Standard 4: Determining Adequate Sample Sizes Pediatrics 2012;129 (3):S140-S145 [PubMed]
  • Sinha Ian P., Altman Douglas G., Beresford Michael W., Boers Maarten, Clarke Mike, Craig Jonathan, Alberighi Ornella Della Casa, Fernandes Ricardo M., Hartling Lisa, Johnston Bradley C., Lux Andrew, Plint Amy, Tugwell Peter, Turner Mark, van der Lee Johanna H., Offringa Martin, Williamson Paula R., Smyth Rosalind L. Standard 5: selection, measurement, and reporting of outcomes in clinical trials in children Pediatrics 2012;129 (Suppl. 3):S146-S152 [PubMed]
  • Hartling Lisa, Wittmeier Kristy D. M., Caldwell Patrina, van der Lee Hanneke, Klassen Terry P., Craig Jonathan C., Offringa Martin StaR Child Health: Developing Evidence-Based Guidance for the Design, Conduct, and Reporting of Pediatric Trials Pediatrics 2012;129 (3):S112-S117 [PubMed]

2011

  • Fernandes Ricardo M., van der Lee Johanna H., Offringa Martin Data monitoring committees, interim analysis and early termination in paediatric trials Acta paediatrica (Oslo, Norway 2011;100 (10):1386-1392 [PubMed]
  • van Woensel Job B. M., Vyas Harish, de Neef M., Merkus M. P., Ursum J., van der Lee J. J. H., Kneyber M. C. J., de Weerd W., Duval E. L. I. M., de Jaeger A., Rosiers F., van Berlaer G., Biarent D., Otte F., Baroncini S., Conio A., Sabra A., Duthy M., Pandya H., Nadel S., Betts H. Dexamethasone in children mechanically ventilated for lower respiratory tract infection caused by respiratory syncytial virus: a randomized controlled trial Critical care medicine 2011;39 (7):1779-1783 [PubMed]
  • Tromp Wilma F. End-stage renal disease in children. Management, outcomes, improvement of care 2011. 185p. ISBN 9789461820310. [UvA Dissertations Online] University of Amsterdam. (Supervisor: Offringa M.; Co-supervisors: Groothoff J. W., van der Lee J. H.)
  • de Ru Minke H., Boelens Jaap J., Das Anibh M., Jones Simon A., van der Lee Johanna H., Mahlaoui Nizar, Mengel Eugen, Offringa Martin, O'Meara Anne, Parini Rossella, Rovelli Attilio, Sykora Karl-Walter, Valayannopoulos Vassili, Vellodi Ashok, Wynn Robert F., Wijburg Frits A. Enzyme replacement therapy and/or hematopoietic stem cell transplantation at diagnosis in patients with mucopolysaccharidosis type I: results of a European consensus procedure Orphanet journal of rare diseases 2011;6 (1):55 [PubMed]
  • van Maldegem B. T., Kloosterman S. F., Janssen W. J., Augustijn P. B., van der Lee J. H., IJlst L., Waterham H. R., Duran R., Wanders R. J. A., Wijburg F. A. High Prevalence of Short-Chain Acyl-CoA Dehydrogenase Deficiency in the Netherlands, but No Association with Epilepsy of Unknown Origin in Childhood Neuropediatrics 2011;42 (1):13-17 [PubMed]
  • Tromp Wilma F., van der Lee Johanna H., Offringa Martin, Bouts Antonia H. M., Collard Laure, Cransberg Karlien, van Damme-Lombaerts Rita, Godefroid Nathalie, van Hoeck Koen, Koster-Kamphuis Linda, Lilien Marc R., Raes Ann, Groothoff Jaap W. Lessons learned from efforts to improve the quality of care in children with end-stage renal disease in the Netherlands and Belgium Archives of disease in childhood 2011;96 (12):1093-1096 [PubMed]
  • Offringa Martin, van der Lee Hanneke Small sample approach, and statistical and epidemiological aspects Handbook of experimental pharmacology 2011;205 (205):181-202 [PubMed]
  • Hartling L., Wittmeier K. D. M., Caldwell P. H., van der Lee J. H., Klassen T. P., Craig J. C., Offringa M. StaR Child Health: developing evidence-based guidance for the design, conduct, and reporting of pediatric trials Clinical pharmacology and therapeutics 2011;90 (5):727-731 [PubMed]

2010

  • Sloot S. C., de Waal K. A., van der Lee J. H., van Kaam A. H. Central blood flow measurements in stable preterm infants after the transitional period Archives of disease in childhood. Fetal and neonatal edition 2010;95 (5):F369-F372 [PubMed]
  • van Leeuwen-Segarceanu Elena M., Tromp Wilma F., Bos Willem-Jan W., Vogels Oscar Jm, Groothoff Jaap W., van der Lee Johanna H. Comparison of two instruments measuring carotid-femoral pulse wave velocity: Vicorder versus SphygmoCor Journal of hypertension 2010;28 (8):1687-1691 [PubMed]
  • van den Tweel Xandra W., van der Lee Johanna H., Heijboer Harriët, Peters Marjolein, Fijnvandraat Karin Development and validation of a pediatric severity index for sickle cell patients American journal of hematology 2010;85 (10):746-751 [PubMed]
  • Roorda Leo D., Scholtes Vanessa A., van der Lee Johanna H., Becher Jules, Dallmeijer Annet J. Measuring mobility limitations in children with cerebral palsy: development, scalability, unidimensionality, and internal consistency of the mobility questionnaire, MobQues47 Archives of physical medicine and rehabilitation 2010;91 (8):1194-1209 [PubMed]
  • van der Lee Johanna H., Wesseling Judit, Tanck Michael W., Offringa Martin Sequential design with boundaries approach in pediatric intervention research reduces sample size Journal of clinical epidemiology 2010;63 (1):19-27 [PubMed]
  • van den Heuvel Maria E. N., van der Lee Johanna H., Cornelissen Elisabeth A. M., Bemelman Frederike J., Hoitsma Andries, Geskus Ronald B., Bouts Antonia H. M., Groothoff Jaap W. Transition to the adult nephrologist does not induce acute renal transplant rejection Nephrology, dialysis, transplantation 2010;25 (5):1662-1667 [PubMed]
  • Cox-Brinkman Josanne, van den Bergh Weerman Marius A., Wijburg Frits A., Aerts Johannes M. F. G., Florquin Sandrine, van der Lee Johanna H., Hollak Carla E. M. Ultrastructural Analysis of Dermal Fibroblasts in Mucopolysaccharidosis Type I: Effects of Enzyme Replacement Therapy and Hematopoietic Cell Transplantation Ultrastructural pathology 2010;34 (3):126-132 [PubMed]

2009

  • Fernandes Ricardo M., van der Lee Johanna H., Offringa Martin A systematic review of the reporting of Data Monitoring Committees roles, interim analysis and early termination in pediatric clinical trials BMC pediatrics 2009;9 (1):77 [PubMed]
  • van den Tweel Xandra W., Nederveen Aart J., Majoie Charles B. L. M., van der Lee Johanna H., Wagener-Schimmel Laetitia, van Walderveen Marianne A. A., Poll The Bwee Tien, Nederkoorn Paul J., Heijboer Harriët, Fijnvandraat Karin Cerebral blood flow measurement in children with sickle cell disease using continuous arterial spin labeling at 3.0-Tesla MRI Stroke; a journal of cerebral circulation 2009;40 (3):795-800 [PubMed]
  • van Veenendaal Mariëtte B., Miedema Martijn, de Jongh Frans H. C., van der Lee Johanna H., Frerichs Inez, van Kaam Anton H. Effect of closed endotracheal suction in high-frequency ventilated premature infants measured with electrical impedance tomography Intensive care medicine 2009;35 (12):2130-2134 [PubMed]
  • de Waal Koert, Evans Nick, van der Lee Johanna, van Kaam Anton Effect of Lung Recruitment on Pulmonary, Systemic, and Ductal Blood Flow in Preterm Infants Journal of pediatrics 2009;154 (5):651-655 [PubMed]
  • van Velzen Alice, de Jaegere Anne, van der Lee Johanna, van Kaam Anton Feasibility of weaning and direct extubation from open lung high-frequency ventilation in preterm infants Pediatric critical care medicine 2009;10 (1):71-75 [PubMed]
  • Eckhardt C. L., Menke L. A., van Ommen C. H., van der Lee J. H., Geskus R. B., Kamphuisen P. W., Peters M., Fijnvandraat K. Intensive peri-operative use of factor VIII and the Arg593-->Cys mutation are risk factors for inhibitor development in mild/moderate hemophilia A Journal of thrombosis and haemostasis 2009;7 (6):930-937 [PubMed]
  • Eckhardt C. L., Menke L. M., van Ommen C. H., van der Lee J. H., Geskus R. B., Kamphuisen P. W., Peters M., Fijnvandraat K. New insights in the cause of inhibitor development in hemophilia A: the Arg593->Cys mutation and high dose of factor VIII may be the culprits. Pediatric clinics Amsterdam 2009;20 (2):8-10
  • van der Lee Johanna H., Tanck Michael W. T., Wesseling Judit, Offringa Martin Pitfalls in the design and analysis of paediatric clinical trials: a case of a 'failed' multi-centre study, and potential solutions Acta paediatrica (Oslo, Norway 2009;98 (2):385-391 [PubMed]
  • Klassen Terry P., Hartling Lisa, Hamm Michele, van der Lee Johanna H., Ursum Jennie, Offringa Martin StaR Child Health: an initiative for RCTs in children Lancet 2009;374 (9698):1310-1312 [PubMed]
  • van der Lee J. Hanneke, Offringa Martin Start van degelijk geneesmiddelonderzoek bij kinderen Nederlands tijdschrift voor geneeskunde 2009;153:A1310-2086 [PubMed]

2008

  • Mokkink Lidwine B., van der Lee Johanna H., Grootenhuis Martha A., Offringa Martin, Heymans Hugo S. A. Defining chronic diseases and health conditions in childhood (0-18 years of age): national consensus in the Netherlands European journal of pediatrics 2008;167 (12):1441-1447 [PubMed]
  • van der Lee J. H., Wesseling J., Tanck M. W. T., Offringa M. Efficient ways exist to obtain the optimal sample size in clinical trials in rare diseases Journal of clinical epidemiology 2008;61 (4):324-330 [PubMed]
  • van den Tweel Xandra W., Hatzmann Janneke, Ensink Elske, van der Lee Johanna H., Peters Marjolein, Fijnvandraat Karin, Grootenhuis Martha Quality of life of female caregivers of children with sickle cell disease: a survey Haematologica 2008;93 (4):588-593 [PubMed]
  • Cobben J. M., Lemmink H. H., Snoeck I., Barth P. A., van der Lee J. H., de Visser M. Survival in SMA type I: a prospective analysis of 34 consecutive cases Neuromuscular disorders 2008;18 (7):541-544 [PubMed]

2007

  • van der Lee Johanna H., Mokkink Lidwine B., Grootenhuis Martha A., Heymans Hugo S., Offringa Martin Definitions and measurement of chronic health conditions in childhood: a systematic review JAMA 2007;297 (24):2741-2751 [PubMed]
  • van der Lee Johanna H., Mokkink Lidwine B., Heymans Hugo S., Offringa Martin Definitions of chronic health conditions in childhood - Reply JAMA 2007;298 (14):1636-1637
  • Boeschoten K. H., Folmer K. B., van der Lee J. H., Nollet F. Development of a set of activities to evaluate the arm and hand function in children with obstetric brachial plexus lesion Clinical rehabilitation 2007;21 (2):163-170 [PubMed]
  • Mokkink Lidwine B., van der Lee J. H., Grootenhuis M. A., Offringa M., van Praag B. M. S., Heymans Hugo S. A. Omvang en gevolgen van chronische aandoeningen bij kinderen. Tijdschrift voor kindergeneeskunde 2007;75 (4):138-142
  • Boluyt Nicole, van der Lee Johanna H., Moyer Virginia A., Brand Paul L. P., Offringa Martin State of the evidence on acute asthma management in children: a critical appraisal of systematic reviews Pediatrics 2007;120 (6):1334-1343 [PubMed]

2006

  • van der Heide Philine A., van Toledo-Eppinga Letty, van der Heide Maaike, van der Lee Johanna H. Assessment of neonatal resuscitation skills: a reliable and valid scoring system Resuscitation 2006;71 (2):212-221 [PubMed]

2004

  • van der Lee J. H., Beckerman H., Knol D. L., de Vet H. C. W., Bouter L. M. Clinimetric properties of the motor activity log for the assessment of arm use in hemiparetic patients Stroke; a journal of cerebral circulation 2004;35 (6):1410-1414 [PubMed]
  • Lecluse N. H. A., van Koerten K., van der Lee J. H., Beelen A., Becher J. G. Schatten van gewrichtshoeken bij kinderen: geen alternatief voor goniometrie Nederlands tijdschrift voor fysiotherapie 2004;114 (1):19-23

2003

  • van der Lee Johanna H. Constraint-induced movement therapy: some thoughts about theories and evidence Journal of rehabilitation medicine 2003;35 (41 Suppl):41-45 [PubMed]
  • van der Lee J. H., Kwakkel G., Lankhorst G. J., Bouter L. M. Woldag H, Hummelsheim H: evidence-based physiotherapeutic concepts for improving arm and hand function in stroke patients: a review J Neurol (2002) 249:518-528 Journal of neurology 2003;250 (1):119 [PubMed]

2002

  • van der Lee Johanna H., Roorda Leo D., Beckerman Heleen, Lankhorst Gustaaf J., Bouter Lex M. Improving the Action Research Arm test: a unidimensional hierarchical scale Clinical rehabilitation 2002;16 (6):646-653 [PubMed]
  • de Kroon J. R., van der Lee J. H., IJzerman M. J., Lankhorst G. J. Therapeutic electrical stimulation to improve motor control and functional abilities of the upper extremity after stroke: a systematic review Clinical rehabilitation 2002;16 (4):350-360 [PubMed]
  • Snels Ingrid A. K., Dekker Jos H. M., van der Lee Johanna H., Lankhorst Gustaaf J., Beckerman Heleen, Bouter Lex M. Treating patients with hemiplegic shoulder pain American journal of physical medicine & rehabilitation / Association of Academic Physiatrists 2002;81 (2):150-160 [PubMed]

2001

  • van der Lee J. H. Constraint-induced therapy for stroke: more of the same or something completely different? Current opinion in neurology 2001;14 (6):741-744 [PubMed]
  • van der Lee J. H., Snels I. A., Beckerman H., Lankhorst G. J., Wagenaar R. C., Bouter L. M. Exercise therapy for arm function in stroke patients: a systematic review of randomized controlled trials Clinical rehabilitation 2001;15 (1):20-31 [PubMed]
  • van der Lee J. H., de Groot V., Beckerman H., Wagenaar R. C., Lankhorst G. J., Bouter L. M. The intra- and interrater reliability of the action research arm test: a practical test of upper extremity function in patients with stroke Archives of physical medicine and rehabilitation 2001;82 (1):14-19 [PubMed]
  • van der Lee J. H., Beckerman H., Lankhorst G. J., Bouter L. M. The responsiveness of the Action Research Arm test and the Fugl-Meyer Assessment scale in chronic stroke patients Journal of rehabilitation medicine 2001;33 (3):110-113 [PubMed]

2000

  • van der Lee J. H., Beckerman H., Lankhorst G. J., Bouter L. M. Constraint-induced movement therapy Physical therapy 2000;80 (7):711-713 [PubMed]

1999

  • van der Lee J. H., Beckerman H., Lankhorst G. J., Bouter L. M. Constraint-induced movement therapy Archives of physical medicine and rehabilitation 1999;80 (12):1606-1607 [PubMed]
  • van der Lee J. H., Wagenaar R. C., Lankhorst G. J., Vogelaar T. W., Devillé W. L., Bouter L. M. Forced use of the upper extremity in chronic stroke patients: results from a single-blind randomized clinical trial Stroke; a journal of cerebral circulation 1999;30 (11):2369-2375 [PubMed]

1998

  • Schulpen T. W., van der Lee J. H., van der Most van Spijk M. W., Beemer F. A. Screening op dragerschap van hemoglobinopathieën in Nederland niet opportuun Nederlands tijdschrift voor geneeskunde 1998;142 (18):1019-1022 [PubMed]

1985

  • Verhulst F. C., van der Lee J. H., Akkerhuis G. W., Sanders-Woudstra J. A., Donkhorst I. D. De prevalentie van enuresis bij kinderen van 4-16 jaar: een epidemiologisch onderzoek Nederlands tijdschrift voor geneeskunde 1985;129 (47):2260-2263 [PubMed]
  • Verhulst F. C., van der Lee J. H., Akkerhuis G. W., Sanders-Woudstra J. A., Timmer F. C., Donkhorst I. D. The prevalence of nocturnal enuresis: do DSM III criteria need to be changed? A brief research report Journal of child psychology and psychiatry, and allied disciplines 1985;26 (6):989-993 [PubMed]