S.C. Gouw MD PhD publications

2020

• Kloosterman Fabienne, Zwagemaker Anne-Fleur, Abdi Amal, Gouw Samantha, Castaman Giancarlo, Fijnvandraat Karin Hemophilia management: Huge impact of a tiny difference Research and practice in thrombosis and haemostasis 2020;4 (3):377-385 [PubMed]
• Hassan Shermarke, Monahan Rory C., Mauser-Bunschoten Evelien P., van Vulpen Lize F. D., Eikenboom Jeroen, Beckers Erik A. M., Hooimeijer Louise, Ypma Paula F., Nieuwenhuizen Laurens, Coppens Michiel, Schols Saskia E. M., Leebeek Frank W. G., Smit Cees, Driessens Mariëtte H., le Cessie Saskia, van Balen Erna C., Rosendaal Frits R., van der Bom Johanna G., Gouw Samantha C. Mortality, life expectancy, and causes of death of persons with hemophilia in the Netherlands 2001–2018 Journal of thrombosis and haemostasis 2020 [PubMed]
• van Balen Erna C., Wesselo Marjolein L., Baker Bridget L., Westerman Marjan J., Coppens Michiel, Smit Cees, Driessens Mariëtte H. E., Leebeek Frank W. G., van der Bom Johanna G., Gouw Samantha C. Patient Perspectives on Novel Treatments in Haemophilia: A Qualitative Study PATIENT-PATIENT CENTERED OUTCOMES RESEARCH 2020;13 (2):201-210 [PubMed]
• Abdi A., Bordbar M. R., Hassan S., Rosendaal F. R., van der Bom J. G., Voorberg J., Fijnvandraat K., Gouw S. C. Prevalence and incidence of non-neutralizing antibodies in congenital hemophilia a—a systematic review and meta-analysis Frontiers in immunology 2020;11 [PubMed]
• Abdi Amal, Kloosterman Fabienne R., Eckhardt Corien L., Male Christoph, Castaman Giancarlo, Fischer Kathelijn, Beckers Erik A. M., Kruip Marieke J. H. A., Peerlinck Kathelijne, Mancuso Maria Elisa, Santoro Cristina, Hay Charles R., Platokouki Helen, van der Bom Johanna G., Gouw Samantha C., Fijnvandraat Karin, Hart Dan P. The factor VIII treatment history of non-severe hemophilia A Journal of thrombosis and haemostasis 2020;18 (12):3203-3210 [PubMed]

2019

• Jardim Letícia L., van der Bom Johanna, Brommonschenkel Christina C., Gouw Samantha C., Rezende Suely M. Inhibitor incidence in haemophilia A under exclusive use of a third-generation recombinant factor VIII concentrate: results of the HEMFIL Cohort Study British journal of haematology 2019;186 (1):152-155 [PubMed]
• Gouw Samantha C., Timmer Merel A., Srivastava Alok, de Kleijn Piet, Hilliard Pamela, Peters Marjolein, Blanchette Victor, Fischer Kathelijn Measurement of joint health in persons with haemophilia: A systematic review of the measurement properties of haemophilia-specific instruments Haemophilia 2019;25 (1):e1-e10 [PubMed]
• Jardim Leticia Lemos, van der Bom Johanna G, Caram-Deelder Camila, Gouw Samantha Claudia, Leal Cherchiglia Mariangela, Meireles Rezende Suely Mortality of patients with haemophilia in Brazil: First report Haemophilia 2019;25 (3):e146-e152 [PubMed]
• van Balen Erna C., Krawczyk Marian, Gue Deborah, Jackson Shannon, Gouw Samantha C., van der Bom Johanna G., Sawatzky Richard Patient-centred care in haemophilia: Patient perspectives on visualization and participation in decision-making Haemophilia 2019;25 (6):938-945 [PubMed]

2018

• Iorio A., Skinner M. W., Clearfield E., Messner D., Pierce G. F., Witkop M., Tunis S., Akehurst Ronald, Jain Mohit, Pezalla Edmund, Valentino Leonard, Altemark Andreas, Belinson Suzanne, Booth Jason, Dahm Philipp, Dolan Gerard, Facey Karen, Gouw Samantha, Hart Daniel, Hilger Anneliese, Hooper Craig, Hoots Keith, Jorgenson James, Keene Daniel, Kim Joanne, Krassova Snejana, LeCleir Gregory, Lillicrap David, Lopes Maria, Marks Peter, Monahan Paul, Moscou-Jackson Gyasi, Murray Jennifer, Mujoomdar Michelle, Neufeld Ellis, O'Hara Jamie, O'Mahony Brian, Österberg Marie, Petrie Charles, Pindolia Vanita, Pipe Steven, Pleil Andreas, Reilly Philip, Reiss Ulrike, Rice Michelle, Ruiz Sol, Sandy Lew, Sawyer Eileen, Sharp Michael, Sood Amy, Gouw Samantha Core outcome set for gene therapy in haemophilia: Results of the coreHEM multistakeholder project Haemophilia 2018;24 (4):e167-e172 [PubMed]
• van Balen E. C., Gouw S. C., Hazelzet J. A., van der Bom J. G., Cnossen M. H. Defining patient value in haemophilia care Haemophilia 2018;24 (4):516-518 [PubMed]
• Hassan S., Cannavò A., Gouw S. C., Rosendaal F. R., van der Bom J. G. Factor VIII products and inhibitor development in previously treated patients with severe or moderately severe hemophilia A: a systematic review Journal of thrombosis and haemostasis 2018;16 (6):1055-1068 [PubMed]
• Timmer M. A., Gouw S. C., Feldman B. M., Zwagemaker A., de Kleijn P., Pisters M. F., Schutgens R. E. G., Blanchette V., Srivastava A., David J. A., Fischer K., van der Net J. Measuring activities and participation in persons with haemophilia: A systematic review of commonly used instruments Haemophilia 2018;24 (2):e33-49 [PubMed]
• Zwagemaker A., Gouw S. C., Valk C., Ganzevoort W., Coppens M., Peters M. Postpartum haemorrhage in an unselected cohort of carriers of haemophilia Haemophilia 2018;24 (4):e256-e259 [PubMed]
• Hassan Shermarke, Fijnvandraat Karin, van der Bom Johanna G., Gouw Samantha C. Preventing or Eradicating Factor VIII Antibody Formation in Patients with Hemophilia A: What Can We Learn from Other Disorders? Seminars in thrombosis and hemostasis 2018;44 (6):531-543 [PubMed]
• Platokouki H., Fischer K., Gouw S. C., Rafowicz A., Carcao M., Kenet G., Liesner R., Kurnik K., Rivard G. E., van den Berg H. M. Vaccinations are not associated with inhibitor development in boys with severe haemophilia A Haemophilia 2018;24 (2):283-290 [PubMed]

2017

• Limperg P. F., Terwee C. B., Young N. L., Price V. E., Gouw S. C., Peters M., Grootenhuis M. A., Blanchette V., Haverman L. Health-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties Haemophilia 2017;23 (4):497-510 [PubMed]

2016

• de Zwart Verena, Gouw Samantha C., Meyer-Wentrup Friederike A. G. Antibody therapies for lymphoma in children Cochrane database of systematic reviews (Online) 2016;2016 (1):CD011181 [PubMed]

2014

• van der Bom J. G., Gouw S. C., Rosendaal F. R. Second-generation recombinant factor VIII and inhibitor risk: interpretation of RODIN study findings and implications for patients with haemophilia A Haemophilia 2014;20 (2):e171-e174 [PubMed]
• Clausen N., Petrini P., Claeyssens-Donadel S., Gouw S. C., Liesner R. Similar bleeding phenotype in young children with haemophilia A or B: a cohort study Haemophilia 2014;20 (6):747-755 [PubMed]

2013

• Gouw Samantha C., van der Bom Johanna G., Ljung Rolf, Escuriola Carmen, Cid Ana R., Claeyssens-Donadel Ségolène, van Geet Christel, Kenet Gili, Mäkipernaa Anne, Molinari Angelo Claudio, Muntean Wolfgang, Kobelt Rainer, Rivard George, Santagostino Elena, Thomas Angela, van den Berg H. Marijke, Altisent C., Auerswald G., Carcao M., Chalmers E., Chambost H., Cid A., Claeyssens S., Clausen N., Fischer K., van Geet Ch, Peerlinck K., Kenet G., Kobelt R., Kreuz W., Escuriola C., Kurnik K., Liesner R., Ljung R., Mäkipernaa A., Molinari A., Muntean W., Nolan B., Oldenburg J., Pérez Garrido R., Petrini P., Platokouki H., Rafowicz A., Rivard G., Santagostino E., Mancuso M. E., Thomas A., Williams M., van der Bom J. G., van den Berg H. M. Factor VIII products and inhibitor development in severe hemophilia A New England journal of medicine 2013;368 (3):231-239 [PubMed]
• van den Berg H. Marijke, Gouw Samantha C., van der Bom Johanna G. Factor VIII products and inhibitors in severe hemophilia A New England journal of medicine 2013;368 (15):1457 [PubMed]
• Gouw Samantha C., Fijnvandraat Karin Identifying nongenetic risk factors for inhibitor development in severe hemophilia a Seminars in thrombosis and hemostasis 2013;39 (7):740-751 [PubMed]
• Gouw S. C. Inhibitor and risk factorsin: T. Saklatvala, editors. Factor VIII: treatment options, dosing and administration, prophylaxis and pharmacokinetics.. London: Hospital Pharmacy Europe; 2013. p. 17-20
• Gouw Samantha C., van den Berg H. Marijke, Fischer Kathelijn, Auerswald Günter, Carcao Manuel, Chalmers Elizabeth, Chambost Hervé, Kurnik Karin, Liesner R. I., Petrini Pia, Platokouki Helen, Altisent Carmen, Oldenburg Johannes, Nolan Beatrice, Garrido Rosario Pérez, Mancuso M. Elisa, Rafowicz Anne, Williams Mike, Clausen Niels, Middelburg Rutger A., Ljung Rolf, van der Bom Johanna G., Altisent C., Auerswald G., Carcao M., Chalmers E., Chambost H., Cid A., Claeyssens S., Clausen N., Fischer K., van Geet Ch, Peerlinck K., Kenet G., Kobelt R., Kreuz W., Escuriola C., Kurnik K., Liesner R., Ljung R., Mäkipernaa A., Molinari A., Muntean W., Nolan B., Oldenburg J., Pérez Garrido R., Petrini P., Platokouki H., Rafowicz A., Rivard G. Intensity of factor VIII treatment and inhibitor development in children with severe hemophilia A: the RODIN study Blood 2013;121 (20):4046-4055 [PubMed]
• Gouw S. C. Remmerontwikkeling bij kinderen met ernstige hemofilie A Kinderarts en Wetenschap 2013;8:17-19
• Gouw Samantha C., Fijnvandraat Karin Unraveling the genetics of inhibitors in hemophilia Blood 2013;121 (8):1250-1251 [PubMed]

2012

• Gouw Samantha C., van den Berg H. Marijke, Oldenburg Johannes, Astermark Jan, de Groot Philip G., Margaglione Maurizio, Thompson Arthur R., van Heerde Waander, Boekhorst Jorien, Miller Connie H., le Cessie Saskia, van der Bom Johanna G. F8 gene mutation type and inhibitor development in patients with severe hemophilia A: systematic review and meta-analysis Blood 2012;119 (12):2922-2934 [PubMed]
• Balak D. M. W., Gouw S. C., Plug I., Mauser-Bunschoten E. P., Vriends A. H. J. T., van Diemen-Homan J. E. M., Rosendaal F. R., van der Bom J. G. Prenatal diagnosis for haemophilia: a nationwide survey among female carriers in the Netherlands Haemophilia 2012;18 (4):584-592 [PubMed]

2011

• Gouw S. C., van der Bom J. G., van den Berg H. M., Zewald R. A., Ploos van Amstel J. K., Mauser-Bunschoten E. P. Influence of the type of F8 gene mutation on inhibitor development in a single centre cohort of severe haemophilia A patients Haemophilia 2011;17 (2):275-281 [PubMed]

2010

• ter Avest P. C., Fischer K., Gouw S. C., van Dijk K., Mauser-Bunschoten E. P. Successful low dose immune tolerance induction in severe haemophilia A with inhibitors below 40 Bethesda Units Haemophilia 2010;16 (102):71-79 [PubMed]

2009

• Gouw S. C., ter Avest P. C., van Helden P. M., Voorberg J., van den Berg H. M. Discordant antibody response in monozygotic twins with severe haemophilia A caused by intensive treatment Haemophilia 2009;15 (3):712-717 [PubMed]
• Gouw Samantha C., van den Berg H. Marÿke The multifactorial etiology of inhibitor development in hemophilia: genetics and environment Seminars in thrombosis and hemostasis 2009;35 (8):723-734 [PubMed]

2008

• van Helden Pauline M. W., van den Berg H. Marijke, Gouw Samantha C., Kaijen Paul H. P., Zuurveld Marleen G., Mauser-Bunschoten Evelien P., Aalberse Rob C., Vidarsson Gestur, Voorberg Jan IgG subclasses of anti-FVIII antibodies during immune tolerance induction in patients with hemophilia A British journal of haematology 2008;142 (4):644-652 [PubMed]
• ter Avest P. C., Fischer K., Mancuso M. E., Santagostino E., Yuste V. J., van den Berg H. M., van der Bom J. G., v Geet Ch, Peerlinck K., Rivard G., Chambost H., Auerswald G., Escuriola Ettinghausen C., Kreuz W., Gouw S. C., Altisent C., Villar A., Jiménez Yuste V., Cid A. R., Haya S., Petrini P., Tedgård U., Liesner R., Khair K., Yee T. T., Lee C. A. Risk stratification for inhibitor development at first treatment for severe hemophilia A: a tool for clinical practice Journal of thrombosis and haemostasis 2008;6 (12):2048-2054 [PubMed]

2007

• Gouw Samantha C., van der Bom Johanna G., Auerswald Günter, Ettinghausen Carmen Escuriola, Tedgård Ulf, van den Berg H. Marijke Recombinant versus plasma-derived factor VIII products and the development of inhibitors in previously untreated patients with severe hemophilia A: the CANAL cohort study Blood 2007;109 (11):4693-4697 [PubMed]
• Gouw S. C., van den Berg H. M., le Cessie S., van der Bom J. G. Treatment characteristics and the risk of inhibitor development: a multicenter cohort study among previously untreated patients with severe hemophilia A Journal of thrombosis and haemostasis 2007;5 (7):1383-1390 [PubMed]
• Gouw Samantha C., van der Bom Johanna G., Marijke van den Berg H. Treatment-related risk factors of inhibitor development in previously untreated patients with hemophilia A: the CANAL cohort study Blood 2007;109 (11):4648-4654 [PubMed]

2001

• Gouw Samantha C., Le Thuy-Nga, Sreeram Narayanswami Tetralogy of Fallot Current treatment options in cardiovascular medicine 2001;3 (5):361-369 [PubMed]