New course on health data ethics & regulatory (rare diseases)
Researchers from our department contributed to the new MOOC course "New course on Health data ethics & regulatory frameworks in rare disease research".
It is designed for anyone interested in health data research and rare diseases, such as undergraduates, PhD students, healthcare professionals, researchers, and enthusiasts keen on understanding ethics and regulatory frameworks in this field.
The course will include the following topics:
- different types of research data and sources
- importance of health data for rare diseases research
- data processng activities
- role of data sharing and its benefits
- ethis, regulatory and data protection framework
Interested? You can sign up through this link.