Publications PhD M.A. de Vos
- Position
- Research Associate
- Main activities
- Education, Research
- Specialisation
- End-of-life decision making in pediatrics, parental involvement, end-of-life care, communication
- Focus of research
- Process of end-of-life decision making in pediatrics with special attention for pediatric intensive care
- Role of parents and child in end-of-life decision making
- Ethical dilemmas in pediatric end-of-life care
- Tailor-made communication between medical team, parents and child about end-of-life care and end-of-life decision making
- Handling of conflicts in end-of-life care
Amsterdam UMC Research Institutes
AMC departments
All publications
2018
- Zaal-Schuller I. H., Willems D. L., Ewals F. V. P. M., van Goudoever J. B., de Vos M. A. Considering quality of life in end-of-life decisions for severely disabled children Research in developmental disabilities 2018;73:67-75 [PubMed]
- Zaal-Schuller I. H., Willems D. I., Ewals F., van Goudoever J. B., de Vos M. A. Involvement of nurses in end-of-life discussions for severely disabled children Journal of intellectual disability research 2018;62 (4):330-338 [PubMed]
2017
- de Vos Mirjam A. Zelfverwondend gedragin: Zelfverwonding. Gouda: Centrum voor Consultatie en Expertise (CCE); 2017. p. 46-86, ISBN 9789081841030
2016
- de Vos M. A. Commentaar: Casus 12 'Niet-reanimeerverzoek van familie'in: Maartje Schermer, Frans Ewals, Marion Weisz, editors. Ethische dilemma's in de zorg voor mensen met een verstandelijke beperking. Assen: Koninklijke Van Gorcum; 2016. p. 75-77, ISBN 9789023254126
- Zaal-Schuller I. H., de Vos M. A., Ewals F. V. P. M., van Goudoever J. B., Willems D. L. End-of-life decision-making for children with severe developmental disabilities: The parental perspective Research in developmental disabilities 2016;49-50:235-246 [PubMed]
- Zaal-Schuller I. H., Willems D. L., Ewals F. V. P. M., van Goudoever J. B., de Vos M. A. How parents and physicians experience end-of-life decision-making for children with profound intellectual and multiple disabilities Research in developmental disabilities 2016;59:283-293 [PubMed]
2015
- de Vos Mirjam A., Seeber Antje A., Gevers Sjef K. M., Bos Albert P., Gevers Ferry, Willems Dick L. Parents who wish no further treatment for their child Journal of medical ethics 2015;41 (2):195-200 [PubMed]
- Broerse Mirjam Anke Sharing the burden of deciding: How physicians and parents make end-of-life decisions 2015. 226p. ISBN 9789462595804. [UvA Dissertations Online] University of Amsterdam. (Supervisors: Heymans H. S. A., Willems D. L.; Co-supervisor: Bos A. P.)
- de Vos Mirjam A., Bos Albert P., Plötz Frans B., van Heerde Marc, de Graaff Bert M., Tates Kiek, Truog Robert D., Willems Dick L. Talking with parents about end-of-life decisions for their children Pediatrics 2015;135 (2):e465-e476 [PubMed]
2011
- de Vos Mirjam A., van der Heide Agnes, Maurice-Stam Heleen, Brouwer Oebele F., Plötz Frans B., Schouten-van Meeteren Antoinette Y. N., Willems Dick L., Heymans Hugo S. A., Bos Albert P. The Process of End-of-Life Decision-Making in Pediatrics: A National Survey in the Netherlands Pediatrics 2011;127 (4):E1004-E1012 [PubMed]
2009
- Verhagen A. A. Eduard, de Vos Mirjam, Dorscheidt Jozef H. H. M., Engels Bernadette, Hubben Joep H., Sauer Pieter J. Conflicts about end-of-life decisions in NICUs in the Netherlands Pediatrics 2009;124 (1):e112-e119 [PubMed]
2001
- de Vos Mirjam Bijzondere zorg voor bijzondere kinderenMaarssen: Elsevier gezondheidszorg; 2001. ISBN 9789035224087